Facial Palsy UK
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Synkinesis

Hello I need help..

4 months of facing bell's palsy when I stared to recover from it , I realized now I'm facing synkinesis. Now I'm on 6th month and I also told my doctor that I'm facing synkinesis but she told me only to continue vitamin b till u recover fully.

Can u plz help by suggesting something or by suggesting exercises or kind of advise it will be very helpful for me .I'm not feeling good 1st bell's palsy and now synkinesis..

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Hi there I also have synkinesis.....i see a regular Physio for face exercise...and have BOTOX every 4mths for my eye closing it works but then comes back with avengence once the BOTOX runs out I feel it will always be this way....i don't know where you live but I have an excellent consultant one of the best in the country for bells.

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Thanx for replying :)

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Take a look at this page on Facial Palsy UK's site -- facialpalsy.org.uk/support/...

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Does those exercises work for synkinesis????

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According to the site the exercises help with the tightness caused by synkinesis. I don't think they correct the synkinesis itself. But can only help.

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Hi. I have Synkinesis round my left eye. I have been having Botox injections every three months for a number of years now. I did have a break from them and took Gabapentin capsules but had to keep upping the dose. I am back with the Botox and am very happy with the result. I also have Botox in the right hand side of my face to “even it up”. This I pay for approximately £200 every 4 months.

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Thanx for replying...

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So sorry to hear you are having a tough time with bells, please don’t give up, persevere. Get your doctor to refer you to a Bell’s palsy special unit, it’s at the John Radcliffe’s hospital or a neurological unit in Oxford. You can also be referred for facial rehabilitation . Please don’t be fobbed off,there is help available. Facial palsy uk site has been a tremendous help, get in touch with them through the link.

Have been coping with my synkinesis. I know exactly what you are going through and would have been grateful for any help suggested. Mine came a bit late I do hope you don’t delay any treatment that would improve your lifestyle

Best wishes

CV

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Hi , I have synkensis ( 11 months post onset). I see a Bell’s palsy specialist unit. The exercises they have given me, which are bespoke to my symptons, I was initially quite dismissive of. Now after 2 months of doing them every day, I can see results. It is great to see some improvement, however small. The facial palsy website has loads of advice / contacts too.

Massage and stretching can be very therapeutic. Hope you get some help. If you’re under NHS, be warned, my gp was not keen to refer me until I had got to 6 month stage , with limited improvement. Exercises not recommended in the early phase of recovery,as it can impair nerve repair.

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Can u plz tell me those exercises which you are doing for your synkinesis . It would be really helpful.

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