My long-standing synkinesis : Hi my name is... - Facial Palsy UK

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My long-standing synkinesis

Linhlinh158 profile image
Linhlinh158

Hi my name is Linh and I’m 17. I suffered from bell palsy maybe 3 times and the latest one was 5 years ago. I don’t know but I think bell palsy is gone now but its effects are still obvious on my face, and if I was not wrong, it’s called synkinesis. I just want to ask if synkinesis will go away and my face will be as normal as it was when I was not a bell palsy patient?

Thanks guys

6 Replies

Hi Linh. I had BP 18 months ago and I still have sykenensis. My eye closes when I chew and when blowing cheeks out. As my GP is one who isn't interested I have tried doing things myself. Have tried acupuncture - try finding one that has experience of treating BP. My first was OK but a bit of the wall! The one I use now explains all that she is doing. It seems to help for a while. One thing she has taught me is to keep that side of your face warm - don't let the wind and cold get to it(wind is a big thing in chinese medicine). I feel a lot better in warm weather. I also massage my face when sitting watching tv. I also had a couple of sessions with a kinesiologist - felt better for a while (don't know how this works!). It all costs money though (£50 session). I keep hoping things will get better. My advice is try different things and try to stay positive.

Linhlinh158 profile image
Linhlinh158 in reply to WILLOWBY

Thank you for your advice. I’m thinking of trying out botox as well as massage. Hope that will work for me

25clai profile image
25clai in reply to Linhlinh158

I have synkensis, recently developed after 8 month onset of BP. I am fortunate to get help from the NHS via a specialist unit. I am under Bell’s palsy physio, who have given me exercises to try and improve the synkensis. It’s about relaxing parts of the face which are overactive, whilst retraining other muscles/ nerves. At least this is my impression from my recent consultation. If you can be referred into a special unit, I would recommend it. I have also been advised that if needed , Botox will be an option too. At this stage hoping to be able to improve it via exercise. My referral was recommended to my GP via the eye hospital, where I have been receiving care since the BP caused eye complications.( a few days into it).

Prior to the referral, when I was getting very fed up about the face pain/ palsy, I considered cranial osteopathy, but soon changed my mind when I saw the cost and also my concern that there may be no improvement .

Hope you find good support

Linhlinh158 profile image
Linhlinh158 in reply to 25clai

So will synkinesis go away? I’m pretty curious about this

Hi. It sounds as if you need some specialist help. If you would like to e-mail support@facialpalsy.org.uk we can give you some advice.

I have read.... that the younger a person is.... and you are, that there is a possibility you will regain your face back to normal. Check to see if your Vitamin B is level is normal... it is suppose to help!

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