After having a brain tumour removed in May 2013 I have been left with severe balance issues, (having physio) hydrocephalus(fluid on the brain, which is under control as was fitted with a permanent variable lumbar shunt) and facial palsy on my right side (mouth has dropped, eye doesn't blink or close, cannot fully smile) you don't realise how much your face tells a story. It's only when you lose your facial expressions that you realise people read you from them. Before the operation I was quite an attractive and outgoing person (sorry to seem vain) but now I feel very conscious about how I look. My confidence is at an all time low. Also worry about eating out, conscious of food being round my mouth or dribbling when drinking as there is numbness on the facial palsy side. When talking to people they seem disinterested as articulating myself can be difficult sometimes, I forget words, speech is slower, so people tend to finish sentences for me or just lose interest, which upsets me. Im becoming introverted, Some days I just want to stay in bed, but can't as it wouldn't be fair on my family or my dog (she needs exercising) so I force myself to get up, get ready and go out. I do have a few good friends but they work and have their own families so it's a little difficult to get together. I can't drive because of my balance and can't walk too far, so getting out and about is proving a mission too! I would love to make new friends/acquaintances that are in a similar situation or be given advice as to what I can do to make myself feel better about me. Any response would be lovely. I live in the Essex area of UK and ideally would love to set up a group for meetings, coffee mornings/afternoons and chats. Anyone want to join me? Really would like the support. Can be lonely sometimes... Look forward to any response. Take care all
Last edited by Elkcub001
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