Would love to speak with other parents dealing with night -wetting with older children.

[mumtoL]

Hi, I am a mum to a talented, ferociously independent 9 year old little girl who bed-wets. She has been on Desmo melts and Lyrinal tablets for well over 18 mths - we have managed over the last 3 months to reduce the Lyrinal to 5mg. We tried last week to come off the Lyrinal completely, she managed 3 nights and then starting wetting again (after having weeks dry on the 5mg). I would love to talk to other parents who have children of a similar age as my daughter as she is getting so frustrated. She is so grown up in so many ways and this is the one thing she has no control over. I would love to hear from anyone who has successfully weaned their child of Lyrinal and ask how long it took (I appreciate each case is different)?

My daughter was really wanting to go to a performing arts residential this summer, but she gets so embarrassed about it and does not want me to tell the organisers about her medication, so is now saying she won't go. I just feel this is starting to really interfere with her life now and feel so sorry for her.

Thanks x

[Jennier60]

Hi,

Although not the same we have a 8 year old boy who bedwets. We have tried everything.. Including desmomelts which worked well.. Then the nurse said we should trial without... And he was dry without for about 4 weeks.. Amazing I thought he's cracked it... He was so pleased... Until he started wetting every night... It's just a phase I thought... He was away at cub camp this weekend and wet... The kids all knew and made him feel awful so now he doesn't want to go on camp anymore... Or any over nights... He was so confident about it all... But now he's upset... I have this morning rung the nurse and I will try to get him back under her and on the desmomelts... I just wanna cry for him.

Nobody really understands it... Just think either he's weird or I'm a rubbish mum for not teaching him... They don't understand the problem.... Xxx

[mumtoL in reply to Jennier60]

Hi there, thanks for your reply and I am totally feeling your pain! My daughter is turning 10 in September and it just feels like we are never going to get there. She has been dry for weeks on her medication, but as soon as we stop, she starts to wet again after a couple of nights. We obviously avoid all fizzy drinks, caffeine etc and she drinks lots of water during the day.

It is not your fault at all, it is a medical condition where their bladder have not grown to the size it needs to be.

She gets very embarrassed about this and she is definitely missing out on opportunities/nights away! Her nurse indicates she will need to be on medication for as long as it takes - but I wonder if there is any other medical intervention available? It's really horrible for them at this age

Keep going with the desmo-melts with your boy - at least these can be taken very discreetly just before he goes to bed. I hope he makes some progress soon - so sorry to hear about his camp experience - its so tough on them. xx

[Jennier60 in reply to mumtoL]

Thanks for replying... I feel the same as you... We make some progress then it's like 100 steps back... We are avoiding all caffeine, fizzy, dark coloured juice anything like that...last drink an hour before bed...

Yes I wonder what else can be done... Even at 6 or 7 years old he wasn't bothered but he's so embarrassed about it now... And it will stop him sleeping anywhere...

Yes he said he just wants the tablets again and says he can hide them in his sleeping bag pocket. I feel for him and your daughter as they shouldn't have to deal with it all.

Xxx

[mumtoL]

Tell you son he is doing really well to be just on the desmo-melts - my daughter has the additional tablets Lyrinal tablets too - which are harder to disguise

This will be easier for him to come off eventually.

Good luck! xx

[Jennier60 in reply to mumtoL]

What do the lyrinal tablets do? We had oxybutoien(sp) but they stopped it to try the melts...

Do u find anything that helps her stay dry or anything that might make it worse? I think part of it is anxiety with my son he's a worrier and sensitive.. But I haven't found anything really helps apart from the tablets x

[JamesParkin]

Hi, I know you posted your comment a year ago, but if your daughter is still having problems and you are still looking for other parents to chat to then you may be interested to know that I set up a new Facebook support group last month, Bedwetting in Children and Teens, which provides a supportive and friendly environment to discuss bedwetting: facebook.com/groups/2883470...