Help

[apn01]

Morning I need advice on all the medications I now take, prior to surgery ref scaring on right temple lope , I only was on lamotragine , after surgery It was 11 months I was seizure free , they have tried a few medicines but the side affects was terriable as i started to have grand mal seizures so my consultant added on phenytoin, with the seizures not being controlled they have added on another medicine called Eslicarbazepine, I’m trying to cope with time getting it into my body but it makes me feel exhausted , tired , “drunk “ with the staggering and one event when trying to get off a bus I my legs were like rubber I stumbled that much everyone was getting out my way thinking I was really drunk My neighbour asked if I have a drink or drug problem as I’m looking spaced out too , does anyone know the timescale it’s helped stop the seizures as I have only had 1 in six weeks normally it was every 2 weeks I feel bad putting the side affects worse than the seizures ,has this happened to anyone else

[G1na]

Hi,

I'm sorry to hear about what you are experiencing. It's a good idea to speak to your doctor about the side effects you're experiencing. In the U.S. Dr's. advice us to stay on our medication for at least 3 months. Last year I was put on Fycompa and I had really bad side effects: insomnia, extreme weight loss, anger and irritability to name a few. I reported this to my doctors a month in and I felt pressured to give Fycompa a chance. I did and the side effects only got worse. In the end I ended up being put back on the same medication (cocktail) I was on plus an additional 5mg of Onfi (controlled substance). Fycompa did help my seizures but for me it was not worth it. If i experienced grandmal seizures maybe I would think differently. Best of luck.

Gina