Forty five years ago I stood looking out the window one Saturday when all of a sudden I collasped. Turned out to be a Tonic-Clonic seizure. The first of thousands yet to come. I had no control of my Epilepsy for some twenty five years.
Although all the doctors I saw said I would never have any control of my seizures, in spite of everything I refused to give up and did manange to achieve some degree of control even though it was not complete control and the next twenty years of seizures were unpredictable, it was better than the first twenty five.
As far as dealing with my Epilepsy I had a hard time. I had a nervous breakdown and because of the daily seizures had to quit school in the 10th grade.
About a year after my first seizure at age 14 I had my first experience of Status Epilepticus. In the hospital I was put into an induced coma for about a week or two. When I came to I didn't remember anything of my past, parents nothing. I found out I developed Retrograde Amnesia, my entire life's memories were gone (15 years)and they never returned.
There is always hope however, I did obtain some control and even managed to get a drivers license which I would lose at least 8 more times. But I've got one now and had it for the last 16 months.
Anyone with Epilepsy should have a MedicAlert ID (or similer) in case of emergency. It has saved me more than once. The question I am asked most often is aren't you embarrassed or ashamed you have Epilepsy? Absolutely not, I know about the condition and if other people are ignorant of it that's their problem not mine. NEVER be embarrassed or ashamed you have the condition.