Mr Ronald Griffiths

[Lewisukuk]

8 years ago I had a cycling accident I was on my last day of annual leave and doing a charity cycle ride and I was knocked off bikein which I almost lost my life. The results being amongst other things I developed epilepsy. Bringing people up to the present day I am scared to go out on my own because I have had seizures when out on my own where I have wet and soiled myself which has mortified me so now unless someone is with me I won't go to out at all I am still having 3 or 4 seizures a month

[wxy123]

Sounds, understanably, as if your mental health is affected. Do you have an epilepsy nurse? You could at least have pads so you are not embarassed if you have a seizure. Perhaps a local epilepsy or Headway group could help find someone to go out with. Good luck with finding local support.

[Lewisukuk in reply to wxy123]

I do or did have one since covod lock down I haven't heard off anyone it's as if they don't care anymore

[EpilepsyAction1 Partner Epilepsy Action]

Hi, It is tough managing epilepsy when it can have such an impact on your independence and confidence. 

I hope you hear from others here, as sharing information and experiences can be really helpful.

Can I just check you also know about our other services?

We have some other online services where you can link up with others: 

epilepsy.org.uk/info/suppor...

facebook.com/epilepsyaction

instagram.com/epilepsyaction/

We have our online and face to face support groups: 

epilepsy.org.uk/support-for...

epilepsy.org.uk/support-for...

Finally, if you think it may be helpful to speak to one of our advisers in more detail you can contact us by live chat or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm: epilepsy.org.uk/support-for...

Regards

Mags 

Epilepsy Action Helpline Team