seizures

[Charlie90]

aquired brain in 2019.

Resulting in many deficits

one of the worst being epilepsy

with regular generalised seizures.

have tried several different types of medication.

cutrently still not controlled.

just wondering if any one has had vns surgery?

looking to hear experiences and success stories if there is any out there

thank you x

[Astley10]

Don't know how ur views on this subject is mate but cannabis oil even without the thc so you won't get a high of it .but it shrinks tumours stops seizures but big PHARMA doesn't want us to know about it been trying hard but the games up they would lose billions. this came from a Dr 20 years ago and but thanks to the Internet the secrets out money is power 🔋. And u can grow it ourselves they lose billions.

[EpilepsyAction1 Partner Epilepsy Action]

Hi Charlie90

Thank you for your post. Living with uncontrolled epilepsy must be very hard for you.

The VNS has been offered to help people with difficult to control epilepsy for many years. We have information on this that you may find helpful. epilepsy.org.uk/info/treatm...

I hope you hear from others in this community soon. If you don’t, Epilepsy Action have other ways for you to try contact others who have had the VNS implanted. These are:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

From our experience, in most case people find it helpful to talk to or contact people who understand what they are experiencing.

If you wish to talk to our helpline team and you live in the UK please do phone our freephone helpline 0808 800 5050.

Our helpline is open Monday to Friday 8.30am until 5.00pm, and Saturday 10.00am until 4.00pm.

Regards

Diane

Helpline Team

[Comedy]

did you try depakote? My son went through 12 meds over 13 years and all were ineffective and we explored seizure surgery but opted not to. He has been seizure free for a year and 8 months on depakote.