Epilepsy detection devices

[steve31]

Has anyone had any experience of using electronic devices to detect seizures on children? My 13 year old son is diagnosed with epilepsy and we are aware of absences during the day but suspect the odd possible tonic-clonic during the night. We are looking into the options but there has been little research about their accuracy/value. Any advice or experiences welcome. Thanks.

[Hidden]

Any hospital will arrange a sleep study for you. It can be done in the hospital or you can take the equipment home.

[MW93]

hi there as far as I know

If you keep in touch with the Neurologist you child will treatment as he is below 15 if goes over 15 would be a bit hard but for new better you be in touch and it’s possible.

Regards

Hope your lovely Child get a good treatment

[EpilepsyAction1 Partner Epilepsy Action]

Hi steve31

We can't make recommendations. But we've some information on our website about different mobile seizure alarms, bed alarms and apps that might be useful for people with epilepsy. epilepsy.org.uk/info/daily-...

We are also often asked for feedback about alarms and monitors, but it is rare that people tell us about their experiences with these products. If you are looking for feedback about different products, as well as this platform, you might be able to ask others through our Facebook, Instagram, and Twitter pages.

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

instagram.com/epilepsyaction/

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

[steve31 in reply to EpilepsyAction1]

Thank you Diane. I will take a look.

[Charlie90]

hi there.

I have recently started using the embrace empactica

It is a seizure alert watch

It detects tonic clonic seizures when they are happening

I have them at any time.

It’s tried and tested by me and it has detected 3 TC seizures now

It then alerts registered care givers that you need assistance

It’s been a game changer for me.

Reduced anxiety and increased independence

There was a waiting list for this.

Got an email when it was available

as I said i have tried and tested it.

It works and it is well worth getting!

Hope this helps

[PoppyPlymouth in reply to Charlie90]

Hello Charlie, Thanks for the info. Did you have to self purchase this or was it available via the NHS or Adult Social Care please?

[Charlie90 in reply to PoppyPlymouth]

really sorry only just seen this

No I funded this myself tbh I didn’t even ask about social care funding as I believe it is an American device

It’s worth a try though?!

I hope you have made some progress on finding something?

take care

[Rraditau]

apparently a certain model of the Apple IWatch can act as a seizure detection device as well but I’m not too sure how accurate they are .

Hopefully you get what you need.

Good luck

[steve31 in reply to Rraditau]

We have now got a Garmin smart watch and putting a separate detection app on it which alarms my phone when pulse rate or oxygen saturation become abnormal. He wears it at night as we noticed he had focal seizures with accompanying high pulse rate up to 130. He also has an anti suffocation pillow as we are worried about his breathing being affected at night with seizures we don't know about.