Gabapentin: My neurologist prescribed me... - Epilepsy Action

Epilepsy Action
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Gabapentin

hafsa97
hafsa97

My neurologist prescribed me Gabapentin early last year (2019) to help with my sleep seizures. I tried for a day/two but stopped taking them because I felt unsure about being on this as well as Keppra. I thought if I eat healthy, exercise, the usual, I should get into a healthy sleep routine and my sleep seizures would decrease/go away. So I did and it worked! But I’ve recently had a few sleep seizures & I’m thinking of starting to take it. Does anyone know about this or know anyone who’s taken this medication? I’m really hesitant especially as I don’t want any extra side effects. Advice or anything is useful, thanks so much!

6 Replies
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hafsa97
hafsa97
in reply to Seddy85

Thank you so much @Seddy85! You’re a star 💫

You’re welcome xx

EpilepsyAction1
EpilepsyAction1Administrator

Hi hafsa97

It is scary when you learn about possible side effects of a medicine.

All medicines can cause side-effects, including epilepsy medicines. When you get your prescription, it should, by law (UK) include a package leaflet which lists the possible side-effects.

The risk of getting side-effects varies from person to person.

Some people will not have any side-effects but some people do. When first starting on epilepsy, some people have told us that their side-effects have lessened over time, as their body has got used to taking their epilepsy medicines.

If you have side-effects that continue, it would be best to talk to your GP or epilepsy specialist. They might make changes to your epilepsy medicine to reduce the side-effects.

With epilepsy medicine, it is important to take your medication as prescribed for it to work properly.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

It's hit and miss i feel, it has helped with my constant headaches and general fatigue to a degree. But when i have increased beyond 500mg it seems to make me act a bit off so to say.

I am suffering with sleep seizures myself at the moment, so i feel your pain there. Problem is how little people seem to know, about how sleep seizures affect your day to day life.

Best of luck finding something that helps

Craig

hafsa97
hafsa97
in reply to Cpt_Craigen

I’m glad to hear that it did some good. And definitely, it was helpful to hear from someone who also suffers from sleep seizures, sometimes they tend to be worse than the actual generalised ones. Hopefully we can overcome it, & thanks for your support it means a lot. Wish you the best of health! Enjoy your week :)

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