I am a middle age wife and mother of two, whose kids are pretty much grown now. I have three cats.. who are my babies. I have lots of things I deal with everyday, and seiZures are one. Mine being at night mainly, I have had some complex partial and a grandmal during the day. They started , at least to our knowledge in 2014 when my vision changed dramatically, my balance went off . I honestly am not too worried about that, as I am the other health issues I have. As long as my seizures don't happen during the day... I'm good :). I learned to not worry or stress about things I can't control or change... after I did, life got much easier to live I am hoping that being in the community here will allow me to get more insight into seizures, as it will be a part of my life that won't change. Epilepsy was put on my medical record.. I wasn't happy. But oh well. 😉
New here 🙃: I am a middle age wife and... - Epilepsy Action
In brief after reading what you have to say, I got the impression that you do not have any faith in your neurologist or what they have to say about your epilepsy.
The most sensible thing that I can suggest is to go to your doctor and ask them to refer you to another neurologist. The new neurologist can then reassess your case
I wish you well
I am fine w my neurologist.. as there is a lot more going on than just the seizures that I put in my post. Neurologically and other medical ways as well. I have nine specialists who pretty much all work together via linked computers to make sure nothing gets over looked when something pops up when I see one dr betweeen visits from another dr. I have fired several drs for not listening to me as I know my body well... and they have more than once had to 'eat crow' when I was right w something and they were wrong. ( usually men, as they are arrogant) So believe me, I am not afraid to stand my ground with anyone. I am my own advocate for my health.. 🙃
I hope you hear from others in our HealthUnlocked community, as sharing information and experiences can be a really good idea.
If you are in the UK, can I just check you also know about our local groups, including coffee and chats? These give people the chance to meet each locally and offer a relaxed way to meet new people, share experiences and get information on how to learn more about epilepsy.
If you would like to see if there is one near to you please use this link epilepsy.org.uk/near-me
Epilepsy Action Helpline Team
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