I have suffered with myoclonus for a while now and ive had parkinson's for 41 years too. I usually try and put a funny spin on it when I recount stories of spilling drinks or food over myself i find it helps me cope . Has anyone else got any coping strategies or tips they would be willing to share?
Myoclonic jerks : I have suffered with... - Epilepsy Action
Myoclonic jerks
Written by
Bionicmatt
To view profiles and participate in discussions please or .
2 Replies
•
EpilepsyAction1PartnerEpilepsy Action
Hi Bionicmatt
I’m sorry you’ve not had any feedback on our HU community. Sharing coping strategies or tips can be a really good idea.
In most case we have found people find it helpful to talk or contact people who understand what they are experiencing. For this reason we have other services to help put people in touch with each other.
You may be interested in our local groups, including coffee & chat groups, Epilepsy Action’s forum4e online community, and we are on facebook and twitter.
epilepsy.org.uk/info/suppor...
If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050.
Regards
Diane
Epilepsy Action Helpline Team
Not what you're looking for?
You may also like...
Juvenile Myoclonic Epilepsy
Hi everybody!
I'm Lisa from Greece, 31 years old and 4 years ago I was diagnosed with Juvenile...
How many people find a routine is very important to there daily life?
Hi this might seem like a strange question but I was wondering how many other epileptic people find...
Those with temporal lobe epilepsy – I need some advice from you please!
Good afternoon all,
I randomly developed temporal lobe epilepsy in February and eventually started...
Temporal lobe epilepsy question
Hey folks,
I have a question for those struggling with temporal lobe epilepsy to get some advice....
Grandmal epilepsy
I have had epilepsy since age 50 and have had many changes of medication none of which have worked...