Epilepsy Action
1,222 members398 posts

Hi I'm new

This week I was told I have epilepsy I am 76 years old and this is a new world for me

My medication is Lamotrigine .I was being treated for a small stroke I had in February and was admitted to A&E because I fell in the street last week and after tests and scans Consultant gave me the news .I feel nervous but I will get on and learn all about this condition .hope to make new friends .

4 Replies


It must have been a shock been diagnosed with epilepsy. Epilepsy can start at any age, and there’s not always a reason. Sometime when a person has had a stroke, the damage the stroke has caused to the brain can cause someone to develop epilepsy.

I hope you meet other people on this site. If you are interested in meeting others we also have local branches and coffee & chat groups in various parts of the UK.


To help you learn more about your epilepsy and any related issues we have an information section on our website.


If the helpline team can be of any help, please feel free to post your questions or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.



Epilepsy Action Advice and Information Team



It can be a shock to be diagnosed with epilepsy. I do hope you are starting to come to terms with it.

Making contact with other people is a really good way to help with that. Hopefully people with respond to you on Health Unlocked. For more choices around support see our Epilepsy Action page: epilepsy.org.uk/info/suppor...

We have plenty of information about epilepsy: epilepsy.org.uk/info/basics.

I hope this will also be useful.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Helpline freephone 0808 800 5050.


Epilepsy Action Advice and Information team


Thank you for your reply I'm sure I will find the information on Health unlocked very helpful and friendly .


Do not worry about epilepsy, it is the stigma, the old 'legends', ignorance of the condition, that scares the general public. There are plenty of drugs for the condition, I am on Epilim and Lamictal, I think I have tried most of them, I 'started' when I was 14. There have been several improvements in medication and treatment since then, general ignorance about the condition has lessened greatly. Keep in touch with your epilepsy specialist [find your local one via your GP], of your various side effects, he will be able to advise you on medication and limits. I have had epilepsy for over 40 years, but it only since I retired 3 years ago that my amount of seizures have decreased dramitically, [2 since December 2013] I find coming to terms with it, less pressure, getting a set routine for each day, finding your limits always helps. Most of my friends are aware of my condition. Keep your pecker up!


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