Does anybody else get extreme pain in the... - Endometriosis UK
Does anybody else get extreme pain in their kidneys? I've been getting this for over a year now,tests for infections come back clear.
Yes. Been happening to me for around 6 months. Everytime its blamed on kidney infection, ive had my urine sent off 3 times and each time theres blood but no infection. Back pain is incredible when it happens, i feel like ive been kicked in the lower back - hard.
Yes unfortunately i too have these symtoms have done for several years now along with rectal pain and now starting to feel out of breath a lot has anyone else had this? Had laparoscopy 6 years ago but since have had rectal polyps removed this year ( biopsy all clear thank goodness) and am finally booked in for 2nd laparoscopy in December less than 2 weeks before xmas!! Following a hysterectomy offer at 32!!!! ( To which i declined after it was confirmed that it may not even aliviate problems!)
Any one have any tips at all?!
Have tried diets tried alternative therapies used good old fashioned painkillers tens etc now spent most of my time drugged up or in the bath ( or both which is becoming more dangerous) and i am counting down the periods i have left!
I had my son 10 years ago at home with no pain elief and found it a doodle ( he was 9 pound!) I would rather do that every month i know im not a "wimp" but i find myself wondering can this amount of pain really be physical every month it tries me to a different level not sure how much more i can take
x
I have been on several hormonal pills since the age of 15 and recently had zoladex implants in my abdomen which put me through the menopuase ( wouldnt reccomend it at all!!!)
Have decided if this one doesnt work i will go for hysterectomy has anyone else had to go this far does it work?
x
im on my 2nd round of zoladex,did nothing the first time but had an ovary and fallopian tube removed since then,so here i am on my 2nd course,and if it works this time iv been advised to have a hysterectomy at the ripe old age of 33!!!
Have just had wonderful news that operation postponed until jan now Know only month away but thats another two or three sessions of agony before asmall light at end of tunnel im devastated so much I fine it hard to speak to anyone 
Aww hen 
I think we all feel like that sometimes, do you have a good support network around you? Are you on any endo support groups on FB? Im in the endometriosis uk group on FB and the support i get from the ladies on there is brilliant,it makes all the difference when talking to somebody going through the same x
be carefull as i too was advised to have an early hysterectomy at 28 and i continued to have pain, they found out five years later that the endo cells had migrated through the womb to the muscles behind. Three years ago my gyne recommended getting my ovaries removed as he said hot sweats would be a good trade for pain. i followed his advice and i am still in pain. good luck x
Hysterectomy does not work as the problem lies outside of your womb. Endometriosis is when deposits implant in other places and is then controlled by your hormones. It would be more advantageous to have ovaries removed but then you'd go into an instant menopause.
I had the uk version of zolly, prostap. It was injected by my GP and basically put me into a chemical menopause - AWFUL. Ive had 4 laps, 2 of those in the past year and it helps for a while then the pain comes back.
update on my original question........... was at my GP today,have blood in my urine. Been given antibiotics and iv to hand another urine sample in when iv finished taking them,he wants to make sure the blood has cleared cos if its still there it could be endo in my kidneys thats causing all the pain
I have just today been to the doctors cos I've had cloudy urine and pain in my right side over the kidney. Got blood and white blood cells in my sample so they've sent it off and given me antibiotics. I get this about 3-4 times a year and every time it comes back clear from the lab.
I've started thinking it might be to do with endo, but I just don't know!
Been suffering some urinary problems too, like painful bladder and urgency and feeling like my bladder doesn't fully empty. I had a renal ultrasound about a month ago and I'm sure it has been lost in the system because my consultant discharged me before I had the scan.
Are you any better after 3 days since you last posted? Hope so. x
sorry it has taken so long to reply. I am much better now,thanks. I wouldnt wish a kidney infection on my worst enemy!! Went back after the antibiotics and the blood has cleared from my urine 
x
Still suffering now, even though my sample was clear, my doctor is pretty sure it's an infection, but thinks the endo is contributing to it. Not got blood in my urine now, but I've got other signs of infection like white blood cells. On my 3rd lot of antibiotics in 3 weeks (can't be good), and the ones I'm on now are the strongest ones they can give me!
Hope these ones work! x
Yay, the antibiotics worked, I'm feeling pretty well now, but still got the pains. Back at work since yesterday, but really not ready to go back. Been off ill so much that I have to though! My body's a mess and my head's following it.
Not sure what to do, sick of visiting my GP, although he did say I'm probably going to have to be referred back to gynae, but I have only just been discharged from gynae!
I'm so glad some one else gets this, i get such a bad pain that i am in tears and i never no what to do with myself! My doctor always dismisses it also as my blood and urine are fine (they say its normal as can be just high protein, white blood cells and blood in my urine, i dont think that is quite so normal), so im getting no help at all, ive tried hot water bottles but they seem to irratate me even more!
Hi, This is my first response to a question as I only joined the site today but I hope it helps!
I get sharp pain in my right kidney and back every day. It hurts like mad if I drink even the smallest amount of water and when I need to empty my bladder. I am not able to have a full bladder and if I need to go and are unable (not near a toilet etc) I am literally bent over in agony. I had an mri recently which was arranged by my gynae as my lap results had previously shown a couple of years ago that there was a possibility that the endo had reached my ureta (the tube from my kidney to my bladder).
I have just recently seen a urologist as there is blood in my urine who tells me that this tube (ureta) is swollen on both my mri and CT scan results from a while back. They are now going to investigate this further and I am waiting the next test in a couple of weeks time.
All I would say is that if it is persistent and only you know your body and will know if something is not right - go back to your GP and ask for a referral to the hospital. If you feel that will not be successful, speak to your gynae consultant and ask them if there is a possibility that the endo has spread further and whether you can have some tests to check it. Once they have done some tests they can refer you direct to another consultant at the hospital (although mine asked my gP refer me)
I have been fortunate now with my medical team but it has taken me almost 5 years since my first episode to get where I am now and for them to take me seriously.
Good luck. x
