I am 39 years old and was officially diagnosed with endo about 4 years ago but have probably suffered with endo symptoms for about 20 years.
Having had various ops and treatments my symptoms were managed for a while but the endo seems to have come back with a vengeance. I have been off work now for about 2 weeks with terrible pain in my pelvic area, groin, lower back and legs.
I am due to see my Consultant in September but feel I can't wait that long, I am popping painkillers like smarties with little effect....not a long term solution really.
I contacted the Consultants NHS Secretary and she told me there was no chance I could be seen earlier, not even as an emergency appointment. I then rang the Consultants Private Secretary and she said he could see me in a couple of weeks but if I transferred from NHS to Private then I would not be able to see him on the NHS for endo again. I would have to continue my endo appointments with him as a private patient.
I am so frustrated at the moment...just don't know what to do...I know I can't wait until September to be seen as an NHS patient.
Has anyone experienced similar?