diagnosis : worried I might have... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

diagnosis

Rhall99 profile image
6 Replies

worried I might have endometriosis and my gp is not listening having several flare ups of my stomach where I am unable to move bleeding from the back passage and fatigue

Written by
Rhall99 profile image
Rhall99
To view profiles and participate in discussions please or .
6 Replies
Meg_11 profile image
Meg_11

so sorry your having these symptoms! Try to get another appointment with the GP and demand to be referred to gynaecology! Hope you get better!

Bondi64 profile image
Bondi64

keep fighting for answers don't take one opinion, fight to see a gynae / google ones who specialise in endo

If your in a fortunate position to be able to go private fully recommend that- thats how i got my diagnosis within a week

Capi66 profile image
Capi66

See another doctor, do not give up ever!!! Keep at them until they refer you. It may not be Endo but bleeding of any kind needs investigating. Please don't stop! You know your own body. They need to take you seriously. Never think you are a pest, I used to and soon learned that I wasn't and my health was important xxx

TennisCourt profile image
TennisCourt

So sorry you’re suffering lovely. So when I first joined this group I was in your position, feel like my symptoms matched Endo but NHS wouldn’t listen.

I got recommended to pay for a private consultation with a specialist, it was £170 and best thing I’ve done. She instantly made me validated, said it’s highly likely I have Endo and I need the lap surgery.

I’m now on the NHS waiting list however I’m going private as it’s an 18 month wait for my area.

So if I was you, do some research try find a specialist and book an appointment if you can!

Unfortunately in my experience the NHS and GPS just don’t know anything about Endo. It’s really really frustrating but keep pushing. If I stopped digging into what was wrong I would still be none the wiser! Good luck xxx

Rhall99 profile image
Rhall99

thank you so much I am defo going to look into a specialist

Emma2023 profile image
Emma2023 in reply to Rhall99

Please do.....or see a different doctor.It's taken me over 15years to get a diagnosis, I finally have some answers but it frustrates me that it's taken so long.

Keep pushing....good luck!

You may also like...

Diagnosis

devastated and have absolutely no idea what to do now. I'm convinced that I have it but where do I...

Diagnosis

doesn't. I'm having physio on back but that doesn't seem to be helping...every night I have broken...

No Diagnosis

myself an endo warrior. I don’t even know where to go from here. The physio has said he’ll refer...

Diagnosis

afterwords i realised there are stages of severity and where you have it but i never got told.As i...

Diagnosis

I have had a laparoscopy today and the consultant said I have “small amount of endometriosis” tried