Endo vertigo

[Kamane]

Does anyone have experienced vertigo or severe dizziness as a symptom of endometriosis? I had it once before and it almost lasted a week and feels like it’s starting again now.

[ChloeL934]

I suffer so much with vertigo. It’s awful. I usually get medication from doctors longest mine has lasted was 10 days. Hope you feel better soon xxx

[Billysugger21 in reply to ChloeL934]

Me too always have. I get spinning room type vertigo where you literally cannot live it’s so frightening. I use Stugeron they help a bit but not stopping it. You have my sympathy x

[Gardenist]

Hi yes I do. In my case I think its vestibular migraine. No pain but my migraine medication gets rid of it. I don't think it's directly related to my endometriosis but definitely something to do with hormone fluctuations. It's a relatively new thing for me and I'm not sure why but hope it goes away. Hope you find something that helps.

[Kamane]

Thanks for all your responses. That’s reassuring as I already had millions of ideas like for example that the tissue started growing on my brain. 🙈 Any ideas how to regulate hormones naturally? Also I have a Covid vaccine booked up on Tuesday, I wonder if I should go ahead with it?Thanks

[Moonglo in reply to Kamane]

Helllo! Please at least go to the appointment- you can always ask them when you’re there, if you still need reassurance.

[NW248]

Yes, I had it for years varying in intensity, but it didn't go away when I had a hysterectomy. I suspect it is a candida infection as candida and endo can help each other along (check my past posts for an in depth explanation). I suffered for years with my GP refusing to accept that you can have a candida infection without visible signs. Then I discovered that you can get fluconozole over the counter at chemists and over the internet as long as you tell them it is for thrush.

[Bethleah]

Yes been struggling with it for years. It’s linked to Endo and my hormones. I haven’t found anything that helps yet. Hormone treatment makes it worse.

[Dogmad6]

I started to have very severe vertigo attacks with vomiting and diarrhoea. I don't know that there is any connection to endometriosis at all, perhaps there is but it has never been suggested. I ended up getting diagnosed with Meniere's disease after a horrific time for 18 months.

I have Betahistine which helps a lot.

Good luck getting a diagnosis as there are lots of causes and it's really horrible. xx

[Meg_M]

I’ve had benign paroxysmal positional vertigo for over 6 years… and learnt about my endometriosis for about 1.5 years ago. It’s crazy, I never thought there could’ve been a correlation between the two till I read all of the comments and responses above!

My vertigo was particularly severe with 40-50 episodes a day and nausea at its worst points. I take Stugeron for my Vertigo along with carrying out frequent Epley manoeuvres which have greatly helped in making this manageable.

[Kamane]

Any of you who experience vertigo/dizziness experienced head and forehead tingling as a result of it? I will go and see a neurologist as soon as I can as it doesn’t sound like it could be related to endo. I did feel some fullness and pressure to my ear but was in A&E on Saturday and they didn’t see any infection, just a fuller eardrum. And not sure inner ear problems could cause tingling of a head and forehead.