Pain relief endometriosis
im already on 30mg cocodamol but past wee... - Endometriosis UK
im already on 30mg cocodamol but past week literally been bed bound havnt eaten in 3 days and doctors useless any ideas on what I could use?
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Coral07
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Naproxen 500 with codine 2mg has been the mix for my pain, and they has been really useful
Also forgot to add I can’t take anti inflammatory as they constipate me and all I do is pass blood, does anybody else have this problem??
The pain nurse told me Tramadol was better for endo, depends on level, I take either this or Oramorph, try not to take either if I can help it. On Amitriptyline as nerves are involved. Nefopam is a non opiate painkiller. Most painkillers contribute to constipation, this’ll depend on each person and what might work.
What have you discussed with GP?
Oh yes deffinatly but I’ve asked for these and the doctors in my local A&E keep saying “oh no your not entitled to pain relief that strong unless you’ve got cancer 
I swear doctors think is women with endo were born yesterday haha
Absolute tosh 😂. It was the pain nurse when I went to A&E that suggested it and she was the first person to actually say the pain isn’t in your head. Having read about some research going on in Edinburgh, this mentioned the cells act in a similar way to cancer cells, but not life threatening (even though it feels like it), they’ve been trialling a cancer drug to reduce endo. I haven’t seen any results yet.
Ask your GP for an urgent pain clinic appointment if they aren’t prepared to help.
If you’re under endo specialist/BSGE they will be able to help as well.
Unfortunately this could be a time that you have to push through the crap.
I wouldn’t suggest the way I let rip yesterday to a GP though, let’s say frustration got the upper hand 😂🙄
Halerious isn’t it🙄 and wow didn’t know that let’s hope we get some good news from that!! And yes I got referred to a pain clinic but missed it as I was so I’ll I couldn’t move😟 I’m seeing my specialist next Monday for prostap injections going to see if there’s something I can do so am not still having to beg for pain relief in the future it’s just degrading and embarrassing and good let rip it’s about time we stood up for ourselves haha
You can contact the pain clinic directly if a referral has been sent, I’ve done it, especially when GP screwed up said referral 🙄Hopefully the injections will help. I tried Zoladex, hate needles, Emla cream was my best buddy 😂
I’ve told two GP’s I’m sick of feeling like I have to beg for help, you are so spot on 👍😆
No one can still give a reason why I’ve lost over four stone and pain after eating, you’d think nutrition wasn’t important 🤷♀️🤦♀️, hence my massive whinge 😂 I have no regrets. She’s asking Rheumatology for advice. GP’s prefer this as a first stage instead of referral these days, it’s cheaper!
Oh wow I’m having exactly the same thing I used to be a size 16 6 months ago now I’m a size 8 I’m constantly neausious never want to eat and I get horrid pain when I eat too always regret eating once I have been on strong anti sickness tablets for so long but they still havnt figured out whyyy!!! 🙁 hope you get the help you need because nutrition is soooo important!!!
I was 16/18 last December, a 10 is getting baggy, apart from belly. I don’t ever remember being this thin. Does it feel weird to you? I can understand needing to lose some for general health. I take multi Vit/min, plus extras. Meds deplete these as well.
GP suggested Sclerderma, never heard of, it’s autoimmune and can affect skin and internal organs. I had an abnormal anti nuclear test back in May which they ignored, so thought I’d remind them this week. 😆
I’ve had various scans to check bowels, nothing has really shown. Gynae referred to gastro, who when I spoke to him said he didn’t think bowel, slightly sarky about tests Id had and said gynae issue.
Do persist with GP to check on other things and not just rely on one diagnosis.
Haha I do actually smoke it and helps with my pain better than any painkiller just don’t wanna end up smoking my life away just to cope hahaha
