Hysterectomy 20 months ago for stage 4 endometriosis

[jax86]

Hi All,

First time posting so please bare with me, I had a hysterectomy 20 months ago at the age of 32 for stage 4 endometriosis, adenomyosis, and a bowel shaving after 12 years of fighting with doctors, during the hysterectomy I had my left ovary removed although I signed up to have everything removed, my right ovary was left, about 3 months after my op I started to feel pain coming from the remaining ovary, a scan last December found that the ovary has got endo back on it and now stuck and not mobile near my hip, I had a call from my consultant in march who agreed to remove the ovary and would be waiting 6 months, given everything that's going on with covid I appreciate there would be additional waiting times, however now waiting 7 months I called to see if there was any news to be told the waiting list is now 14 months, I am waiting for a call to confirm if that's 14 months on top of the 7 months already or if I have to wait another 7 months, but I am struggling, the pain is excruciating, I take morphine at night, I am managing to work, but the pain is getting more painful and more frequent, has anyone else experienced this? I am trying to get my doctor to agree to a scan to see what's going on as this ovary has always been prone to get cysts!! Any advise would be great.

[Lindle]

Unfortunately the waiting lists at the specialist endo centres are long at the best of times. As any follow up should be organised by the centre have you conveyed your concerns to the specialist endo nurse to see if they can organise an expert scan for you?