Prostap Hell

[Peoni]

Hi everyone,

I am due to have my second prostap on wednesday, it's not going to happen, I have had 4 weeks of sheer hell on this.

I have lost count of how many times I have cried, endless days spent in bed, the joint pain has been unbearable, my hair is falling out, I feel as if I have flu that's never leaving my body.

I am disappointed that I am unable to manage this drug but I will end up loosing my job if i stay on it.

I'm worried about seeing my consultant tomorrow, when I tell him I wont be continuing with it, I feel he will give up on me, such a worrying time.

Has any one else been in a similar situation?

[Anita80]

Hi I was put on 2 courses of prostap injections in 2 years. It didn't stop my periods or help with the pain all it did was turn me into an emotional hormonal pychotic cow bag I was horrendous on it I really tried and persevered with it but in the end after my operation the last time I realised not for me. I have heard that some people are ok of it once body gets used to it I just happened not to be 1 of them lucky ones. Think as I already have history of anxiety depression panicky attack plus epilepsy just made things worse. You really need to see what your consultant thinks voice all concerns

[Whisking1]

Hi don’t cry I’m exactly the same ss you this frug has increased my pain and made completely irrational about everything, I spoke to my consultant yesterday and he was sweet it’s not for everyone so speak to him if your struggling so much

Chin up x

[Peoni]

Hi ladies sorry for the delayed reply, I had a bit of a meltdown yesterday.

I went to see my consultant to be told he wasnt in clinic and that my appointment was made in error, my appointment had been brought forward due to the lumps I had developed down below.

I have chose not to have any more prostap, for me it's too deliberating, I have never felt so ill.

I have stage 4 endo my bowel is attached to my uterus and my douglas pouch (if that's what it's called) is also severely affected, I was told this is why I have toilet troubles.

My only symptoms of endo was the toilet troubles, bad periods and period pains around ovulation time.

I'm hoping that I can live with these problems until I hit the menopause, I'm 42.

I am worried that a hysterectomy wont cure everything, plus I'm worried about the after effects, like a chance of a temporary colostomy and all of the other risks.

I feel in myself that I have made the right decision and only time will tell.

Us females dont have much support with this disease, those that dont have it dont understand how it feels, I feel like I'm stuck between a rock and a hard place, not knowing what to do for the best.

What I do know is since I have made my decision I feel like a weight has been lifted.

I hope that anyone reading this gets the right outcome and the best treatment they deserve ♥️

[Whisking1]

Hi they gave me the same and as I’ve gone through the month my symptoms just got worse, I wasn’t bleeding but now I’ve started and the pain is immense.... I’ve only got to suffer till the 6th jan then I’m in for a hysterectomy and going home on hrt so hopefully it will sort my problems out

Hope you get it sorted hun