Can endo return after having ovaries remo... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Can endo return after having ovaries removed?

Sweetyassi profile image
2 Replies

Hi everyone,

Question here, I have had many operations in the past to remove endo and it keeps coming back. I've had full hysterectomy and both ovaries removed. I was doing great for a year until my endo symptoms came back. I'm just wondering if anyone else has had endo return after having ovaries removed or have or going through menopause?

Sweety.

Written by
Sweetyassi profile image
Sweetyassi
To view profiles and participate in discussions please or .
Read more about...
2 Replies
angiecxx profile image
angiecxx

Hi I hope you are ok yes endo can return after a full hysterectomy 😢 I had one too a couple of years ago I haven't been right since and I also have fibro myalgia due to being so poorly after my FIVE hour operation 😡😡 it was meant to be an hour and a half but there were many complications I'm afraid endo never goes away completely it's not curable (despite being told having a baby or a hysterectomy will get rid of it) I got told after my op that endometriosis spreads I have it on my bowels and bladder and spine and my gullet I have had to research alot of information about endometriosis myself maybe you could do the same my lovely 💛💛x p.s I have been going through the menopause since I didn't know that the menopause can last for many years after a hysterectomy 😢😢xx

Sweetyassi profile image
Sweetyassi in reply to angiecxx

Hi angiecxx,

Sorry to hear that you went through all that and still are suffering. I have had many operations to remove endo but it keeps coming back. I suffer with celiac disease,IBS weakness in my spin, my bones are thinning, suffer from menopause as well. My last operation was in 2017, I had both my ovaries removed it was a 5 hour operation and I developed compartment syndrome in my right calf while in the recovery room and had to have 4 emergency operation within 1 week. So instead of staying in hospital for 2 nights I ended up staying 2 weeks. I was on crutches for over a year. And last year I had another operation on my right leg to correct my foot so I could put my heal down it was to stretch my Achilles tendon. Now I have noticed that my bladder pains and infection are back. My headache is back. In fact all my symptoms are back from before I had my ovaries removed. I'm was guessing that maybe the surgeon missed a little bit of endo. But can't be sure.

Are you taking HRT tablets?

I'm taking Femoston which I have and am scared to take.

Sweety.

You may also like...

Can endo return after removing both ovaries?

worked for you? Has the endo returned? I had my endo and both of my ovaries removed last year...

active endo after hysterectomy and ovary removal

abdominal hysterectomy and ovary removal 9 months ago and just been told that I still have high...

Endo back after ovary removal

month back with an endo specialist. Has anyone else had their ovaries removed and it has returned...

Having ovaries removed

I wondered if anyone hear had a hysterectomy but kept their ovaries and then had their ovaries...

Endo post hysterectomy or ovaries removal

unique as it can be, has anyone here had a hysterectomy or removed ovaries and tubes to tell me of...