Supporting my family

[Cherub82]

Hi everyone, I’m new to all this but really need advice, I’m be suffering with endometriosis for about 5 years but only just got told it’s endometriosis, for the last 6 months the bleeding and pains, the pooing, the cramps, the headaches have got so bad I haven’t been able to work, I have my first appointment on 25th June to talk though having a Lapo done, I’m finding it difficult to talk about it with my husband as well as worrying about money, how are you all coping and providing for your families?? Any advice is help (my job is a support worker)

[Boxermomma2]

Hi Katy, I’m so sorry that you are suffering so much it really is one of the most challenging and misunderstood conditions. It’s vague and erratic presentation makes it hard for people to understand. I am a lot further down the diagnosis line than you are and hopefully they will be able to help get you back to work. But I completely understand your worry about money and work; My absence from work has now led to me being advised to take ill health retirement and I’m in the process of trying to sort that out to know what that means financially. I am a single parent and was working full time in London as a psychologist so not working has been a big change! I am currently receiving support from universal credit as well as family. Once the retirement stuff is arranged bigger decision around selling my house and moving will be thought through. It is all such an unknown I am trying very hard to go day by day so as not to get overwhelmed by worry. I’m not sure what support you will be entitled to as your husbands income would come into it but you can explore it. I have also been advised to apply for PIP which isn’t affected by whether you are working and is about what you can and can’t do in daily activity. Not sure I have helped much but if you have more questions please ask I am happy to share my experiences of helpful. Xx

[Cherub82 in reply to Boxermomma2]

Thank you for your reply it really has helped, I will look into pip etc, Wow your further down the road how long does all this go on for I’ve had no advice or been told anything other then I’ve got to see a consultant Which is on 25th , getting very worried now, xx