Diagnosis endo

[BONNIE160110]

Hi I was just wondering how long it took for some of you to receive a diagnosis...I have all the symptoms I've been reading on here and the last to times I've ened up in hospital the 1st not a single doctor had a clue what was wrong with me and this time even thoe my doctor already suspected it I had to sit all day just to be told they agree with my doctor after two more appointments I've been told they may refer me to gynecology but still I don't have any definite ansers and it seems to be getting worse this last flare lasted 3 weeks the first week I could even stand right to walk properly all i was told was to take pain relief but I dosent seem to help sorry for the long post but reading all your posts you all seem to no alott about it I can't wait to research some of your ideas and try them for my self x

[HighsandLows81]

Hi Bonnie!

Basically, after thousands of women with endo did a questionnaire that included that very question. They deduced that the average wait for diagnosis from the start of symptoms is 7 years. I was spot on at being 7 years till I fell ill to when I was diagnosed.

Don’t be like me hon. Insist at the very least on a referral to gynae.

You know your body better than anyone so if it’s behaving like it may have endo, you need an exploratory lap. Asap.

I’m not sure how old you are etc or any other details but if that’s what you and your dr agree, go for it.

Just don’t be fobbed off with suggestions of treatments like zoladex injections or any of that crap until you know for certain you have endo. I really wish I had known that about zoladex back then.

Hope it goes well for you chick.

All the best x

[BONNIE160110 in reply to HighsandLows81]

Thank you so much......I'm 25 but I've had this on and off now for years of bad symptoms I've had a scan befor and told I have cyst on my right ovarie I have pain during sex not stop bleeding major fatigue I can sleep all day and night and still feel like I need to peel my eyes open and so many more symptoms it's just so hard when you no but don't have a diagnosis especially when your trying to explain how you feel to people like family or partners....I'm defiantly gonna push for it because the last flare knocked me of my feet literally x

[Keke123]

I started symptoms at 14... got diagnosed at 21 after being told I had an std for 7 years. Had to pay to go private and as soon as I did, I sat with the woman for 10 minutes and was booked into surgery the next day and diagnosed.

I’m still getting treatment now back on the nhs at 28 but it’s been a struggle to get seen. Currently waiting on another op to remove it.

I would just keep pestering and I found that male gynocologists are the best. Any female one has just told me it was period pains and I was being over dramatic

(Not saying all women gynes are bad, just my experience)