i am new: Hello, I have been going through... - Endometriosis UK

Endometriosis UK

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twoshort profile image
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Hello, I have been going through so much this past year. I went to a urologist and he talked to me for a hour did some test and said you have IC. He said i will call you for a date for your next apt time. I walked in three more times. I had to get fmla because i was having awful pain and flares. I had to go to the urgent care three times and would tell them i am in major pain and something was wrong. I was getting no where and it was getting worse. I saw my Gino this past week and she did test and said have you ever heard of endo? I said no. She said i feel you have it and we will get to the bottom of this. My periods are so bad i cry and can not walk at times. A year later i think things might be going somewhere. Trying to work full time and living this life is awful! I feel i am going to have to sign a pain agreement just to have some relief from this pain. I am afraid and worried i have the job i have dreamed of and fear of getting fired. I am just a mess...i need answers. Don't understand this pain i have been having. If i move the wrong way i hurts.

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twoshort
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Fabbird profile image
Fabbird

Hi, sorry to hear you are having such a bad time. Here we all know about severe pain and you'll get some support.

Has your gynaecologist said she will arrange a laparoscopy? To confirm a diagnosis of endo, that's what you need.

twoshort profile image
twoshort in reply to Fabbird

She want to start with a ultrasound first. She is stopping my periods i will just have four a year. She wants to do the laparoscopy at a latter time she said she wants to start with the bleeding first. I have leave for my IC so i will have to apply for it for endo. Do not know how long that will take.

Fabbird profile image
Fabbird in reply to twoshort

Hi, the ultrasound won't show the endo. I wonder why she's starting with that? Maybe she thinks you might have a cyst? They can be very painful. But if endo is a possibility then a laparoscopy really is the next step. If it is simply diagnostic, then it's only a few days off work in my experience.

Sorry, I don't know what IC is?

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