Endom stage 4: Excited to finally getting... - Endometriosis UK

Endometriosis UK

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Endom stage 4

Broderskim39 profile image
13 Replies

Excited to finally getting my op date next week for robotic keyhole hysterctomy. Hopefully this year I will be on the road to a recovery :)

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Broderskim39 profile image
Broderskim39
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13 Replies
Nicolahunny profile image
Nicolahunny

good luck and hope it all works out for you xxx

Broderskim39 profile image
Broderskim39 in reply to Nicolahunny

Awww thank you lovely x

Nicolahunny profile image
Nicolahunny in reply to Broderskim39

hopefully ill start to feel better soon as well after a hellish week xx

Broderskim39 profile image
Broderskim39 in reply to Nicolahunny

Yea do hope so hun.... nothing worse to put your life on hold certainly not fair what us woman go thro. Sending love your way x

Nicolahunny profile image
Nicolahunny in reply to Broderskim39

thanks love will keep u posted just lot of scans and tests that I'm going through just now due to Endo flair up plus on hormone medication for endometrial cells

Broderskim39 profile image
Broderskim39 in reply to Nicolahunny

Oh hun same as me. Had countless blood test me i scans and ultrasounds been on prostant injections for 6 months now so just waiting to get my date for my robotic keyhole hysterctomy. Hoping it's Sept x keep in touch hun x

Nicolahunny profile image
Nicolahunny in reply to Broderskim39

will do hun and hope your op is a success xc

Marcia71 profile image
Marcia71

If you are having a hysterectomy I'd head to the hysterectomy association's website (hysterectomy-association.or... as they have lots of advice on hysters and the chat forums got me through mine 18 months ago.

Be sure it is being down by BSGE specialist though - mine wasn't and 18 months on I'm still suffering endo pain as it wasn't all taken out at the time, and so continued to grow.

Good luck

Broderskim39 profile image
Broderskim39 in reply to Marcia71

Oh dear and thank you for the link. Hope you get sorted soon x

KSvedenmacher profile image
KSvedenmacher

Hey, I am having the same next week, when is your date? I am having it done at a BSGE centre, we have tried all the other options, so this is the best one left for me. And my gynae is the leading specialist in endometriosis, so he will do a thorough excision at the same time.

And yes, come join us at the hysterectomy website that Marcia gave you, there is so much good information there as well as a chat forum for women having their surgery in August, so we can support each other.

Broderskim39 profile image
Broderskim39 in reply to KSvedenmacher

Oh thank you so much. Felt like I was the only one going thro this. I have finished my 6 month course of injections. prostant I think there called.

I have stage 4 endoand is around my bowels too so I have to have a bowel surgeon present also.

I am not sure on a date as I am seeing my specalist on the 15th Aug so hopefully he will give me one when I see him.

Those injectionshave effected my bones and strength. Feeling like a old lady and am only 40.

I am also on hrt my periods have stopped while I've been on them for 6months. It's would be lovely to keep in contact with you. I have tried to log into that site but it keeps saying there was a problem please try again later x

KSvedenmacher profile image
KSvedenmacher in reply to Broderskim39

You can send me a private message here and I don't mind exchanging email addresses to stay in touch.

Broderskim39 profile image
Broderskim39

Yes please lovely that would be great

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