Log in
Endometriosis UK
40,681 members34,823 posts

Squeamish forum

Apparently my photo had been reported for being "upsetting". Medical issues can be talked about but not shown.

I wont be on here much any more. Sorry for "upsetting" people.

12 Replies
oldestnewest

Oh, that's crazy. I imagine that was extremely useful as I never realised that sort of thing could drop out and it could really reassure others experiencing the same. Since these sites are intended to inform and help in any way they can I hope it wasn't removed? There are videos on line that show excision surgery being carried out that might be considered explicit but these are hugely informative. How can a visual representation of a vaginal deposit be any different and inappropriate to a gynaecological health website? And what about Embarrassing Bodies that is aired publicly, with people having a choice as to whether or not they want to be exposed to the content? Is that considered porn because it shows full blown vaginas and penises? In my view by signing up to a site like this that specifically addresses a gynaecological condition and involves the genital organs, members are signing up to being exposed to any form of representation of those issues that might aid understanding.

I really do feel more and more incensed about this. For decades endo has had the stigma of an embarrassing and disgusting condition to be brushed under the carpet with women having to live in isolation, so often unable to discuss it with those close to them - the only people to whom we should be able to turn for support. For decades I was told by my ex-husband that he didn't understand women's problems so we were to pretend they don't exist! What message does it give to have this stigma represented on here? If it were a picture of the endometrium viewed at a hysteroscopy would that be considered upsetting or is it only when it exits the body? I had a very detailed post on here about post menopausal endo after hysterectomy that is such an important issue that is poorly documented that was removed without explanation. It contained a diagram of the female pelvis so perhaps that was inappropriate visual material. I hope the person who made the complaint feels bad.

10 likes
Reply

Yes it was removed unfortunately. I agree, for a site like this discussing these sorts of topics, and people report it for being upsetting? Its stupid really.

Reply

It's bizarre. Not so much someone finding it upsetting (though no one is forcing them to look at it) but having it removed so others can't benefit.

1 like
Reply

I wasn't offended, when there are 'artists' using menstrual blood and a I saw recently a woman who didn't use sanitary towels when she was doing a run 'to bring awareness' I think these things are far more shocking. We are talking about another woman who was scared and needed a bit of support! There was a warning so what is the problem!

Reply

That was my thought exactly. I always see the human body and all of its functions (even "gross" ones) perfectly normal and fascinating, so I've never been shy about sharing. Especially if it helps people as well :)

Reply

Oh no! That's pathetic!

Although it was rather gross! ;-) ha ha! I really felt for you, as it must have been so scary when it happened. I actually thought to myself that by you sharing it - at least if it happened to someone else who saw it - hopefully they may remember and then not be so distressed. So in that way it could be educational and you were helping others.

2 likes
Reply

I was shocked by the pic but also reassured in case I ever experienced something like that xx

2 likes
Reply

I also agree it was useful - I had never heard of that before and having seen it I would be much less scared if it happened to me in future! Your note did have a big explicit warning on it too!

2 likes
Reply

Thanks, someone had commented on the post that the same thing had happened to her a few years back and she didn't know what it was, seeing that had put her mind at ease. :)

1 like
Reply

Agree with Lindle. I think you were right to post the pic. This is a site for the discussion of gynaecological issues after all, what do people expect? I believe that we need far more factual output about how messy almost anything to do with the human body is. We are becoming ridiculously squeamish about the reality of life, our bodies, and illness, yet while also watching endless mind-numbing gore on all our 'devices'.

Further, I really do not understand, if women with endo cannot cope with the full reality of the condition. I think we need more of this, not less, to make people understand how awful endo is. I spent my teens and much of 20s, 30s, with father, teachers, employers and even GPs telling me: 'Oh, for goodness sake, it's just period pains!'

I've always thought that it would be a good idea if Hilary Mantel's 'Endo-Surgery' nightmare-scenario, but fact-based account of her op to separate her variously fused and damaged abdominal tissues and organs were made into a film.

Reply

I second that, I'd watch it. Everything she says is true, and it's still awful how women with the condition are treated nowadays, and how little is known.

You're right, people in my daily life will watch bloody gore films and not bat an eyelid, but when they ask me to describe my illness all I'm met with is "ewww" and "errrr."

Susan Sarandon also speaks out about her endometriosis from time to time. Women with platforms like that really ought to I think.

1 like
Reply

How idiotic! I agree with Griityreads, if people on here can't cope with that then how can we expect non endo people to understand our suffering?

Reply

You may also like...