Adenomyosis

[linz51277]

Hi three years ago my 15 Years of severe pelvic pain due to endometriosis came to me getting a full hysterectomy at the age of 35 yrs. After surgery the surgeon wrote to me to say my womb was badly damaged due to a type of endometriosis called adenomyosis. For the last three years my pain has got so bad and no painkillers help. Has anyone on this know of or have this condition?

[applebird]

I have adenomyosis, it's when the endometrium lining the womb grows into the outer muscle layer causing damage, inflammation and intense pain.

If you've had a full hysterectomy then it can't be adeno causing you pain anymore as it only grows in the womb - which has been removed.

If you still had your ovaries I'd say it was likely that you have endometriosis left in the abdominal cavity that's been stimulated by oestrogen.

If you don't it could be scar tissue, adhesions or something else post menopausal?

Sorry I don't have any other advice but it definitely isn't adenomyosis causing your trouble anymore.

[linz51277 in reply to applebird]

Yes full hysterectomy but I'm going through tests as it can spread to lining of bowel which I never knew until was recently in hospital. If serious if can cause damage to all muscle wall lining front and back, so that's why I was seeing if anyone had anything similar. It's horrible as I thought hysterectomy solved all but not that simple it seems x

[applebird in reply to linz51277]

That's dreadful, you poor thing, my gynae has been marketing a hyst as a cure all for me!! If it's any use - I did have an op last year to remove a 'nodule' of endo from my bowel wall with partial resection. It didn't give me much relief as the main problem - womb - is still there.. Having an op next year to remove adenomyoma nodule from the womb. All much of a muchness isn't it.

Will probably be having hyst in a few yrs too. So sorry it hasn't been the solution for you x

[linz51277]

Hi always have more pain left side and the surgeon just said full womb and surrounding was badly damaged with it. My symptoms go on for miles lol I am a law university student and I have been asked by go to give up due to my daily pain but I refuse to let this condition win. I was put on hrt for a 3 month trial due my age had stop x