After a very good few months, its thought... - Endometriosis UK

Endometriosis UK

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After a very good few months, its thought my endo has spread to my liver and lung. AGONY.

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what more can i say other than agony and im beyond distraught?

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ap2014 profile image
ap2014

Oh no! What are your treatment options? I work with a guy whose sister had endo in her lung. As far as I know she is doing ok now.

I dont really have any options. Im 22 so they dont want to give me a hysterectomy or an op to laser it off in the original location of my right ovary. Theyve just put me back to back on microgynon/rigevidon until august when i next see the specialist thinking its just gunna magically disappear. But im not stupid, im not in that much pain with it anymore but i know its just masking the disease. As soon as i forget a pill for 1 day i get really bad again! But recently ive been in a lot of pain again in the liver/bottom right lung area which is making it really hard to breathe at times and its just agonising. Im awaiting a liver ultrasound and if nothing shows e.g galstones my doctor wants to refer me for another exploratory lap x