Hi, Is anybody from around the Huddersfield area? xx

Hi, I'm new here, just wondered if anybody was from the Huddersfield area?

Thanks xx

[Just5607]

Hi,

I'm new to the site but I'm from huddersfield too. X

[Hidden in reply to Just5607]

Hi, which part of town are you from? if you don't want to say on here pm me if you like x

[Lilly83]

I'm not from

Huddersfield but from Mossley so not too far x

[Hidden in reply to Lilly83]

Hi, is Mossley near Greenfield? You are very close if it is x

[Pmpknpie]

Hi I'm not from Huddersfield but I'm in Wakefield which isn't far away. x

[Hidden in reply to Pmpknpie]

Hi, which hospital are you under? X

[Hidden]

Hi ladies thanks for the reply, I just wondered what are your experiences with Drs etc in our area, have any of you got any advice to share?

I'm under a gynae consultant at my local hospital & its been a long long road to get as far as I have and I'm not 100% diagnosed yet!!

I'm glad to have found some local people, there I was thinking I was all alone lol x

[Lilly83 in reply to Hidden]

I'm at St Mary's Manchester, I know I can't name my consultant on the forum but he is amazing, he did TPE and excision of really bad stage 4, tubes out, 18cm cyst, endo on bladder, bowel, pod, ureters, sacrial ligaments, did it all by lap and removed every last bit.most would of written me off as needed a hyst or at the very least opened me up

[Hidden in reply to Lilly83]

Oh wow that's amazing, I'm so sorry you have had such a rough time,its great you have such a good thorough consultant, big hug to you xx

[Lilly83 in reply to Hidden]

Thank you, if you do get the chance do look at going there, my surgeon did my first ivf too xx

[Hidden in reply to Lilly83]

Thanks for that, I've just discovered it's a long road and sometimes its good to have people to bounce ideas off, if you ever want to chat feel free to pm me xx

[Pmpknpie]

I'm at pinderfields in Wakefield.

The waiting game does take a while, and gets very stressful. I was in so much pain in march I was sent to a&e by my GP. The operated then, but found out they just removed some cysts and tested for Endo. Only reason they operated as they thought my ovary might have been twisted. I then had to wait 6 weeks after that to get to see consultant to find out exactly what they did.

I was still having the same pain as before. The consultant turned round to me and said they think we should operated again as at the minute the only option. It really annoyed and upset me I wish they had done everything the first time.

I'm now still waiting for them to confirm date on operation I rang to chase up and found out my consultant has broken their hip now there is a delay! I'm totally devastated, I'm in so much pain, I've been told to go to a&e again with it, but not much point they never do anything! They did confirm originally that it would be in 18weeks, I just hope thy still stick with this.

Sorry for a long reply

Hope everything is ok for you

Xx

[Hidden in reply to Pmpknpie]

Oh my that's terrible!, poor you i really feel for you. What have you been given for pain? I have almost constant pain, was put on prostap injections as my consultant wants to give me a lap as last resort. Which is why i haven't been diagnosed properly yet.

I agree about the waiting, its like a constant cycle of getting some hope then waiting it is awful. Also I have had exactly the same experience of a&e, although i had been admitted in the past with the severe pain, i actually overheard Drs laughing at me at the nurses station so since then I have refused to go back via emergency so have been suffering at home.

Could you be seen by another consultant? It seems unfair you waiting because yours is ill.

Best of luck chick and keep your chin up xx

[Pmpknpie]

I'm currently on tramadol, which I'm having to take all the time. It's does help with the pain a bit but not fully. It's just over the past 4 days it's not helped at all and my doctor suggested maybe a&e again. But I'm refusing to go at the minute, just trying to cope, but not slept due to it for the past 4 night which isn good, but will see how I go hope it calms down soon.

I haven't even been offered anything like you, they wouldn't give me anything for the pain I was having just told me to get by and wait for op, but had to go back to a&e due to pain and that's when they gave me tramadol.

That's awful what they were saying about you. You'd think people there would have respect, but they really don't care do they.

But it seems a lot of people don't understand what we go through ad just think we are being stupid. If they had it they would know!

I'm going to ring hospital again tomorrow and see what thy are going to do about it, I hope they can, not going to cope otherwise.

Due to medication I have been told by my gp that I'm

Not to go to work and they keep signing me off. So money is an issue.

Just lucky I have a supportive partner.

Hope everything work out for you too.

You Know I am here if need to talk to someone who understands

[Hidden]

Thank you very much, I know that when my pain has been beyond control a&e have said speak to my gp, who said go to a&e so like you i take my tramadol and wait it out.

I hope when you call the hospital tomorrow they do something, its so unfair, I feel like they actually think I'm taking it or something which really upsets me.

I'm so glad you have a great partner, my hubby is fantastic and is great when i feel rubbish, I just want to get right and get a diagnosis as my 2 kids are missing out on a decent mum who can do things with them, they're used to the situation and a 5 &2 year old shouldn't be used to their mum in constant pain and on meds

[Just5607]

Hi I am from lepton.

I had a slow frustrating process with my doctor sending me for all sorts of tests and sometimes making me feel that they don't believe you.

As I have medical insurance I asked to be referred to a specialist and went to see an excellent consultant at spire hospital in Elland. I had my diagnostic laparoscopy 2 weeks ago where he found stage 3 endometriosis. My ovaries are fixed, I have abrasions to bladder, bowel and stomach and my uterus is in a poor condition. I am going in August time for total pelvic peritoneal excision and my uterus removing. This specialist is excellent but expensive.it is definitely a long road especially when you feel so bad x

[Hidden in reply to Just5607]

I'm with you on the feeling they don't believe you, like who would make up those levels of pain!! Oh my gosh, you are having a tough time chick, are abrasions similar to adhesions? I had a ct as general surgeon thought that was causing my pain, results were inconclusive.

It takes so long to actually get a diagnosis

[nettet]

Hi

Sorry to hear you are suffering. I'm not living in Huddersfield any more but was when I got diagnosed. My advice would be to make sure you keep fighting as I was fobbed off a lot by doctors there. Also try and get sent to Calderdale hospital. I found Huddersfield hospital awful. I was misdiagnosed in Huddersfield after a general surgeon (not gynae) did a laparoscopy and said there was nothing wrong. I was not seen by a doctor after the surgery, nothing was explained, and I was sent home without having a doctor check me with no follow up. It was my first operation, I was living 200 miles away from my family and I received terrible care. After 18 months and plenty of fighting, I got referred to Calderdale where they did a lap and found extensive endometriosis. The gynae was really shocked they had missed it. The aftercare in Calderdale was amazing and all the doctors and nurses I came across there were lovely. Such a better experience. So I really do recommend going there if you have a choice between the two hospitals.

All the best, hope you get sorted soon.

xx

[Hidden in reply to nettet]

Thank you for replying, I have really struggled to get any help from Drs, my consultant is bases between both Hudds & Calderdale so I may benefit from seeing her at Calderdale and take it from there. Every scan I've had has apparently shown nothing apart from an ovarian cyst on left side which the Hudds GENERAL surgeon said wasn't a pro, I'm so sick of being pushed between specialism's!!

I hope you're doing ok now and wish you well for the future. Thanks for the valuable advice xx

[nettet]

Your story sounds very familiar to me. I know how hard it is when no one is listening or believing you, especially when you feel so poorly. I was fobbed off with IBS (even though there was nothing wrong with my bowels!) and even told it was all in my head before I was eventually diagnosed. Please feel free to message me if you want any more info or support. Keep fighting - you know when you're not well.

[Hidden]

Unbelievable, that in this day and age Drs are still so unwilling to listen to patients, I was told, in fact prepped for surgery for appendicitis, only problem is I had it removed in 1998 at 18 years old!!

The thing is I told them I didn't have an appendix but obviously if its pain in that area its either IBS/Constipation/ appendicitis, it couldn't possibly be anything gynaecological could it??

I often laugh at the random diagnoses I've had over the years where nobody has listened or even looked at my previous notes!!!

I often wonder if it's just all my imagination because so many people have more or less said that but like you and millions of other women the pain is VERY real & has a huge impact on our lives, not just physically, but emotionally, financially and all we need is some understanding and someone to actually care!!

So sorry, rant over, I hope you are well and please also feel free to message me, it's hard to explain things to family etc as they don't often understand so it's nice to meet you all, thanks for the kind words and I apologise for the length of this reply.

Big hugs x

[nettet]

Please don't worry, I know what it's like. Your story is exactly the same as mine! It makes me wish I'd complained at the time. I actually had surgery for a suspected appendicitis. They went in and found 'nothing wrong' and then even dared to say that there was nothing gynaecologically wrong! When they went in 18 months later and diagnosed endo they actually found it on my appendix so they clearly had no idea what they were looking at!

I was really good for a couple of years after I had endo removal surgery in Yorkshire. Unfortunately pains have returned and I'm waiting for surgery now. My new consultant thinks that I have it in my bladder and that is what is causing some of the problems. Hopefully I'll be feeling better again after that.

I'm really lucky as my Mum and my boyfriend are amazingly supportive. My mum had endometriosis herself and it was actually her in the end who told me to go back to the GP and suggest endometriosis and ask to be referred to a Gynaecologist. So I'm endlessly grateful for her advice. I had an brilliant GP once tell my boyfriend that "pain for women with endo having sex could be likened to someone grabbing your balls for 48 hours!" Haha!! If he wasn't already supportive he really was after that conversation!

[Hidden in reply to nettet]

Oh that's fabulous!!! Bless your boyfriend, but in all seriousness it's great he has an understanding what life is like for you.

I'm sorry to hear your pain is back

[nettet]

Thank you. I'm hopeful that the surgery will provide some relief and I'll be feeling better soon. I'm really grateful to have such a caring and supportive partner. Although it doesn't stop me feeling incredibly guilty when I'm not well enough to do any household chores and we end up cancelling social events because I'm not well. He tells me not to worry but I think that's easier said than done!

Thank you so much for chatting with me, it's really helped me speaking with someone else going through similar things. It helps so much knowing that you're not alone.

[Hidden in reply to nettet]

No, thank you for your advice & encouragement. I know how you feel re feeling guilty about housework etc but give yourself a break, you have so much to deal with and your boyfriend obviously loves you loads so just do what you can when you can, I found this out myself. It's hard when you feel guilty but things will get better

Well here's hoping you get sorted with the surgery and hopefully things can improve for you. It sucks but we'll get there!!

Please let me know how you're getting on and take care, if you need a chat I'm here xx

[nettet]

Sorry for my late reply. Thank you so much for your lovely message, and please feel free to private message me too. Best of luck with everything you're going through too and I hope you get sorted out soon.

xxxx

[Hidden in reply to nettet]

Thanks chick, stay in touch, keeping everything crossed for you xx