Posts - Encephalitis Society | HealthUnlocked

Encephalitis Society

606 members • 440 posts

All posts for July 2021

Acid reflux UPDATE

A little random question after encephalitis while in hospital I was given omaprazole . Still taken this now 2 times per day. Since April , Just wondering ha...

A little random question after encephalitis while in hospital I was given omapra...

•3 years ago

My Modafinil Experience

Hello folks, Since falling out in 2018, many doctors have tried many things in an attempt to help my remaining difficulties. The worst one is the persistant...

Hello folks, Since falling out in 2018, many doctors have tried many things in a...

•3 years ago

Pains and recovery

Thankfully after 3 month these headaches have calmed down a little, still get them occasionally compared to all day every day, mostly only get them now if I do...

Thankfully after 3 month these headaches have calmed down a little, still get th...

•3 years ago

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Taste and smell and pfizer jab

I have had problems since my encepahlitis with taste and smell I can only eat sweet saltly and bitter food Anything that is not a basic tongue flavour is the...

I have had problems since my encepahlitis with taste and smell I can only eat sw...

•3 years ago

Scalp sensitivity after encephalitis

Since the weather is good warm and sunny thought I’d share this. After being outside for a little while I noticed my scalp seems to be sensitive to sun light ,...

Since the weather is good warm and sunny thought I’d share this. After being out...

•3 years ago

A little perplexed / referral to psychology

I had an appt with my neurologist yesterday and we went through my day to day struggles in a very general sense. My neurologist confirmed that my MRI in March...

I had an appt with my neurologist yesterday and we went through my day to day st...

•3 years ago

Neuropsychologist

Has anyone had experience with a neuropsychologist? Took my BF to see one for the first time 2 days ago. Not very pleased with the visit. Was one hour long...

Has anyone had experience with a neuropsychologist? Took my BF to see one for t...

•3 years ago

Pain relief

Just been prescribed nortriptyline for pain due to nerve pain that is causing headaches and such , has anyone used these and and are they good at relieving...

Just been prescribed nortriptyline for pain due to nerve pain that is causing he...

•3 years ago

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Feel like I've 'hit a wall' again

Hi, I am 7 months into recovery, following viral meningeoencephalitis. Recovery has been a journey, like everyone says but I really felt I was on the mend,...

Hi, I am 7 months into recovery, following viral meningeoencephalitis. Recovery...

•3 years ago

What I put in my hospital bag by the door.

Hard to prepare for the unexpected and not all needs are the same but my experiences have led to me packing the following ..... Fleece blanket (hospital...

Hard to prepare for the unexpected and not all needs are the same but my experie...

•3 years ago

Hi all, I’m currently trying to claim on my critical illness cover, does anyone know when the effects are said to be permanent? Thank you

Insurance claim following Encephalitis

Insurance claim following Encephalitis

•3 years ago

Exercise

I keep getting this told to me by the occupational health. Small steps so they say. Today is the first day I have got out the house headache and light...

I keep getting this told to me by the occupational health. Small steps so they s...

•3 years ago

Dentists

A little of a weird question but something playing in my mind. Has anyone had any issues with dental work after hsv Encephalitis / brain injury due to after...

A little of a weird question but something playing in my mind. Has anyone had an...

•3 years ago

To much to soon maybe

the last 4 days have busy for me, occupational health visits , a medical at work even though I’m off just now, and food shopping. Car journey as passenger was...

the last 4 days have busy for me, occupational health visits , a medical at wor...

•3 years ago

Some research on the possible rebuilding of nerve endings in mice may lead somewhere for E sufferers?

NEUROLOGY / NEUROSCIENCE Psilocybin spurs rapid growth of new nerve connections in mice Written by James Kingsland on July 09, 2021 A new study that tracked...

NEUROLOGY / NEUROSCIENCE Psilocybin spurs rapid growth of new nerve connections ...

•3 years ago

Warning signs of Encephalitis seizures?

It would be good if there are warning signs of encephalitis seizures that have been noticed. My wife, God bless her, says initial signs for me are confusion...

It would be good if there are warning signs of encephalitis seizures that have b...

•3 years ago

Music in my head after encephalitis seizure

Anyone else tending to hear background 'soundscape' type music for lengthy periods after recovery - quite soothing but repetitive low frequency organ sound in...

Anyone else tending to hear background 'soundscape' type music for lengthy perio...

•3 years ago

Slow improvements or so maybe

Hsv encephalitis recovery, All is going ok , apart from these weird sharp stinging headaches every day and light sensitivity. Arriving at 3 month marker now...

Hsv encephalitis recovery, All is going ok , apart from these weird sharp stin...

•3 years ago

Have I developed special insights?

Hi Folks, I've been at home a week or so now after my latest visit to A&E, a steroid drip or two and now on steroid tablets etc. As always the NHS ward staff...

Hi Folks, I've been at home a week or so now after my latest visit to A&E, a ste...

•3 years ago

Shakes

Just noticed as I was about to start filling out a form that when o hold the pen in my hand I develop bad shaking from hand and fore arm just curious and...

Just noticed as I was about to start filling out a form that when o hold the pen...

•3 years ago

Insomnia

Does anyone have trouble sleeping? My mom is one year post-HSV encephalitis and she cannot get more than a few hours of sleep each night. We can’t figure out...

Does anyone have trouble sleeping? My mom is one year post-HSV encephalitis and ...

•3 years ago

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