Posts - Encephalitis Society | HealthUnlocked

Encephalitis Society

606 members • 440 posts

All posts for March 2024

Is anyone out there?

Hi My husband has/had viral encephalitis and is being treated with anti virals. He only went down with it about 9 days ago but I feel that I have lost him. He...

Hi My husband has/had viral encephalitis and is being treated with anti virals....

lady2189

•1 month ago

12 Replies

Encephalitis

My daughters journey , Tanya was first diagnosed with a UTI , she was put on antibiotics for 3 days , after day2 she had no change and we took her to hospital,...

My daughters journey , Tanya was first diagnosed with a UTI , she was put on ant...

Jackiewaters

•1 month ago

9 Replies

Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old

I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other...

I am mum to a 16 year old daughter who has recently been diagnosed with autoimmu...

Cat29red

•1 month ago

15 Replies

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Reaching out to find someone to talk about their experience with my dear friend.

Hello, I am sending a message out into space looking for someone willing to talk about their experience as a survivor of autoimmune encephalitis. My friend...

Hello, I am sending a message out into space looking for someone willing to tal...

ROLLING_COMA

•1 month ago

3 Replies

Suspected brain changes

My son had encephalitis when he was 1, then had transient encephalitis for the next few years. We didn’t know for sure what it was till years later, and...

My son had encephalitis when he was 1, then had transient encephalitis for the n...

Babs40

•1 month ago

3 Replies

Travel

Just wondering if anyone has had any issues entering another country in Europe with their medication, just trying to plan ahead as the other half has a holiday...

Just wondering if anyone has had any issues entering another country in Europe w...

Heavychunky1

•2 months ago

4 Replies

HSV encephalitis

Hi I wanted ask if anyone else has experienced similar symptoms. Over the last 2 months my condition has got worse . My mom has been having episodes of...

Hi I wanted ask if anyone else has experienced similar symptoms. Over the la...

GIL910

•2 months ago

2 Replies

Medical file request

Well as of last week I requested my gp medical record for the period of April 1st 2021 to present, which coveres the encephalitis, got the file yesterday and...

Well as of last week I requested my gp medical record for the period of April 1...

Heavychunky1

•2 months ago

2 Replies

The perils of pooing upside down

If you thought life with Enc was tricky it's easy compared to life in space:...

Gandalf2

•2 months ago

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Update on Autoimmune Encephalitis

I came across this after a random search of LGI1 - a term I'd not heard of before. Here is a description: "Mutations of LGI1 have been linked to autosomal...

I came across this after a random search of LGI1 - a term I'd not heard of befor...

Gandalf2

•2 months ago

3 Replies

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Posts - Encephalitis Society | HealthUnlocked

Encephalitis Society

All posts for March 2024

Is anyone out there?

Encephalitis

Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old

Reaching out to find someone to talk about their experience with my dear friend.

Suspected brain changes

Travel

HSV encephalitis

Medical file request

The perils of pooing upside down

Update on Autoimmune Encephalitis

Search posts

Pinned Posts

Archive