Posts - Encephalitis Society | HealthUnlocked

Encephalitis Society

606 members • 440 posts

All posts for January 2022

Moving from Keppra to Lamotrigine.

I am just coming to the end of my 2nd week of starting to take Lamotrigine whilst still taking my regular dose of Keppra. The intention is to build up the...

I am just coming to the end of my 2nd week of starting to take Lamotrigine whils...

Remos

•2 years ago

1 Reply

Taste issues

I have never had a problem with basic tongue tastes ie sweet salt bitter but cannot still after four years eat fried foods or even baked things like pizza it's...

I have never had a problem with basic tongue tastes ie sweet salt bitter but can...

alpappy

•2 years ago

8 Replies

CHOCOLATE

I CAN TASTE CHOCOLATE PROPERLY AGAIN 🥳 …only took 15 months!

kitnkaboodle

•2 years ago

19 Replies

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Post E, anyone not want to be here?

Hello my fellow suvivors...my E peeps. This question is probably hard for some; however, I am compelled to ask. So, here goes. Post E did anyone feel like not...

Hello my fellow suvivors...my E peeps. This question is probably hard for some; ...

Mnt2sea

•2 years ago

40 Replies

Hi fellow E peeps. This is my first time posting on this sight. I've read comments and enjoy the similarities.

I had E Feb and Mar 2020. Was just wondering. . . Does anyone else feel that your eyes are not functioning properly? My vision is very blurry and my eye...

I had E Feb and Mar 2020. Was just wondering. . . Does anyone else feel that you...

Mnt2sea

•2 years ago

19 Replies

Normal CBC, High NLR?

I have had severe headache and signs of ICP, normal CBC, but NLR was over 20? Is the NLR relevant when the CBC is normal?

I have had severe headache and signs of ICP, normal CBC, but NLR was over 20? Is...

Kungfugirl

•2 years ago

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Contracting Covid

Hi Everyone 👋🏽 I'm curious to know if anyone with Encephalitis has contracted covid here and how you're doing? I.e. did your Encephalitis flare up again,...

Hi Everyone 👋🏽 I'm curious to know if anyone with Encephalitis has contracted...

Elle2090

•2 years ago

19 Replies

World Encephalitis Day! 22nd Feb

Hi Everyone! World Encephalitis Day is next month! I'd love to get some ideas for it! What's everyone's plan? Last year we got some buildings lit up red in...

Hi Everyone! World Encephalitis Day is next month! I'd love to get some ideas fo...

Ocean96

•2 years ago

5 Replies

Lamotrigine

I contracted VE back in 2019 which damaged that part of my brain which primarily to memory. I have recently changed medication from Keppra to Lamotrigine. Has...

I contracted VE back in 2019 which damaged that part of my brain which primarily...

Charing

•2 years ago

15 Replies

Another follow up mri

Well that was interesting attended for my follow up scan again 4th one since April june 21 this time at the main hospital but not actually inside was out side...

Well that was interesting attended for my follow up scan again 4th one since Apr...

Heavychunky1

•2 years ago

1 Reply

Meningitis / Encephalitis Recovery

Diagnosed with viral meningitis and encephalitis in the summer of 2021 at the age of 25. I spent 27 days in isolation in hospital whilst having continuous MRI...

Diagnosed with viral meningitis and encephalitis in the summer of 2021 at the ag...

rhols96

•2 years ago

14 Replies

Encephalitis recovery advice

Has anyone suffering with encephalitis had non existent focus/concentration during their recovery? I came out of hospital approx 4 months ago and this still...

Has anyone suffering with encephalitis had non existent focus/concentration duri...

rhols96

•2 years ago

5 Replies

What a journey! Thank you!

I write this post as a thank you, I hope that my story provides some hope for those early on in their recovery, where everything in the world has shifted to...

I write this post as a thank you, I hope that my story provides some hope for ...

GreenBamboo

•2 years ago

11 Replies

Is there light at the end of the ever growing tunnel?

Hi, I'm looking for people or parents/carers of children who have been affected by the awful condition Encephalitis. My daughter Alice, was 4 when she fell...

Hi, I'm looking for people or parents/carers of children who have been affected ...

beckyalice86

•2 years ago

15 Replies

Bickerstaff brain stem Encephalitis

I am Chris, I was diagnosed with Bickerstaff Brain Stem Encephalitis in December 2019 together with a stroke. I wrote an earlier entry but not have had a...

I am Chris, I was diagnosed with Bickerstaff Brain Stem Encephalitis in December...

Bickerstaff

•2 years ago

10 Replies

Thanks to Everyone

Merry Christmas and Happy New Year to All, I would like to thank all who post on this chat. It has been so helpful to me over the year or so to read your...

Merry Christmas and Happy New Year to All, I would like to thank all who post o...

NebraskaTexas

•2 years ago

1 Reply

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Posts - Encephalitis Society | HealthUnlocked

Encephalitis Society

All posts for January 2022

Moving from Keppra to Lamotrigine.

Taste issues

CHOCOLATE

Post E, anyone not want to be here?

Hi fellow E peeps. This is my first time posting on this sight. I've read comments and enjoy the similarities.

Normal CBC, High NLR?

Contracting Covid

World Encephalitis Day! 22nd Feb

Lamotrigine

Another follow up mri

Meningitis / Encephalitis Recovery

Encephalitis recovery advice

What a journey! Thank you!

Is there light at the end of the ever growing tunnel?

Bickerstaff brain stem Encephalitis

Thanks to Everyone

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