Hope everyone is well . Well after doing so well after the hsv encephalitis with only minor after affects . Now been classed as having a variation of seizure activity based on only smells and a little vomit. So on top of the mess I already take I have sodiam voltroate 2 twice a day. And to again inform dvla about drivers licence which I can see far enough as knowing what the outcome to that one is lol , low and behold after speaking witg my own doctor I have not been diagnosed . And it's a case of take the meds and see how it goes
Another kick in the teeth : Hope... - Encephalitis Inte...
Another kick in the teeth
Written by
Heavychunky1
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5 Replies
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Hey, sorry to hear this. It must be disappointing to you, as I know you want to drive. But it’s good the seizures were identified, and that you’re receiving treatment.
I have some really rare after-effects of E; the damage to my brainstem caused odd movement disorders like hyperekplexia and myoclonus. I get startled easily by loud noises, bright lights, sudden and unexpected events, anything threatening, etc. My license should have been revoked immediately, but, because I don’t have epileptic changes during the startle attacks and jerks and spasms, I technically still have my license. That’s not a good thing. I could have killed myself or someone else. I sold my car and decided to never drive.
It really sucks to go through all of this, but it’s even worse when no one understands or encourages us to accept the new circumstances. No one wishes for this life, and we didn’t choose any of this, but we can choose how we respond… just sharing what I’ve been thinking about recently.
Hope that helps a bit,
Kit
I’m so sorry to hear this! 😟it must be so hard - I feel like I totally get it. I don’t have seizures but I have lots of other crazy things after encephalitis and I’m not able to drive either. It’s really difficult and I still hold out hope that I’ll drive again but maybe that’s just my way of coping….. I instead find things I can do and do them to the best of my ability. Other people don’t always know but I do.
I hope you are ok 🥰
what can I say? This really sucks for you. It must be so so disappointing because you were doing so well. I can only imagine how this must have knocked you back. This is where all the things that even those of us who understand say may not help that much. So just one step at a time. Keep going. And know we all feel for you and are rooting for you.
I know how hard it is to accept not driving. I’ve had up to 2 years without seizures, but then mine always start again unexpectedly. (Usually when I’ve been tired and pushed myself too hard) After 7 years of this happening I’ve accepted that I can’t risk being behind the wheel of a car. In my city I’ve been able to apply for a free epilepsy travel pass for buses and trains , and that has helped by giving me a sense of independence. I hope you find a solution, Heavychunky1.
'I've been told' that if you haven't had a seizure for a year and are still taking meds to achieve this then you can return to driving. No need to tell the DVLA.
On my own account my anxiety and cognitive issues are sufficient to keep me in the passenger seat for a while yet. As regards safety, any driver can have a seizure, heart attack or other issue whilst driving. It's a risk we all run when venturing out on the road.
Looking at how many people drive, maybe we should all have psychological tests and health reports before getting a licence. When my wife drives at 70, cars come flying past.
