To much to soon maybe

[Heavychunky1]

the last 4 days have busy for me, occupational health visits , a medical at work even though I’m off just now, and food shopping. Car journey as passenger was not bad just a little funky feeling with motion and sensitivity to light, found my eyes were over focusing Followed by stairs in work and there lights, total of 3 hours . The shopping part was ok just the noise from people and staff banging boxes. Felt light headed and a little queezy, few days being constant and today I feel drained with no energy, with a not so lovely head pain at top of head at the back lovely burning sensation & stabbing type , learn from the mistakes I guess

[Gandalf2]

Bravo HC1, you had a go and survived.Supermarkets, crowds and the unpredictable are the problem areas and rebuilding the confidence you developed over a lifetime is going to be a struggle. Factor in memory loss and fatigue and you have quite a cocktail.

To others we may appear normal, confident and capable. But strip anyone's confidence level back to a childhood degree and they'd be panicking.

I wear a medical alert wristband and keep within my limits - a trip to the shops is still to be achieved even with a chaperone.

So well done!

[Heavychunky1 in reply to Gandalf2]

Good afternoon hope you are well , to be honest I am glad it was not overly busy but the after math was 3 days to recover, the heat didn’t really help with it

[Gandalf2 in reply to Heavychunky1]

Good morning from the UK and thanks for your reply.

I am doing pretty well, on lots of medication which helps with sleeping. The medics seem to have got the tablet side of things right now and I feel that the seizures are now a thing of the past.

The much promised 'community team' style of support is slowly materialising. They can offer assessments and supervision in the kitchen to show I won't injure myself with sharp knives etc. but the qualified chaperone to the shops and back has to be covered with a different level of insurance. I may have to strike out on my own with my wife rather than wait for the escort.

My wife knows the signs of an oncoming seizure and had got used to calling for ambulances and explaining to the emergency teams what my problem is.

On the surprise need for lots of rest after quite minor exertions, once I got home and began to walk unaided I discovered I needed two days to recover from a stroll to the end of the road and back!

I have since improved and am more mobile now but still a long way from the ability I enjoyed before the seizures and induced comas.

As AC/DC say "It's a long way to the top if you want to rock and roll."