Collagen supplements

[Taurea]

Has anyone ever tried them? They are meant to be good for joint pain, skin and muscle mass. I was wondering if they help at all with hypermobility issues.

[cyberbarn]

There is no evidence that taking a collagen supplement helps at all with hypermobility issues. For many with EDS it is a synthesis problem, that is the problem lies with the making of the tissues, not the raw materials.

Collagen molecules are very large, so what happens when you take them through the digestive system they are broken down into their constituent parts and then the body can use them. however, if how the body uses them is flawed, then it won't matter how much to eat, it isn't going to make a difference.

Additionally, if we could 'cure' hypermobility with a supplement, medics and scientists would be shouting about it from the roof tops!

[Hidden]

It’s advised that we don’t take collagen supplements. We make faulty collagen so taking supplements, we would just make more faulty collagen out of it.

[cricetos81]

I tried biocell collagen from Dr's Best and had a horrible rash pop up. Now weaning off.

[Scallywagg]

Hi. I was curious about supplements, however, my real problems with EDS 2, 3, have started rapidly since the menopause. Going down hill rapidly...back, hips, knee, neck, shoulders, arms , hands etc ! Pain 24/7... taking meds but thankfully have the chronic pain clinic in March.

However, what I tried to investigate was, HRT.. I think only a little research has been done. Since all my manifestations since the menopause, I am definitely curious about HRT, so I will be consulting with Auto immune guys .

Any news, I will post x sally

[Taurea]

sorry for the delay but thanks for all the replies. I have recently stopped work and seem to be busier than before. So it sounds like collagen supplements would be pointless. Scallywag, like you my symptoms have got worse with the menopause. I am on HRT patches which help symptoms of something. Unfortunately, there are problems with supply at the moment so I’m forever chasing up my prescriptions. I feel I’m constantly trying to establish a regular routine of helpful eating, sleeping, exercise, medication etc but symptoms still fluctuate and I’m trying to pinpoint what I didn’t do right. Even with a diagnosis I seem to blame myself a lot for not working hard enough to be well.