I’m a 21 year old girl & have had chronic joint pain since I was 13 - started in my knees and now I’m at the point at which I cannot write. I have so many problems including fatigue, IBS, eczema, dizziness when standing up, allergies (too many to count!!) and the over-the-counter medicines and prescription medications have offered little relief. I’ve been dismissed by so many doctors over the years me been told it’s all in my head and even sent to therapy but last March my physio told me that I am hyper mobile and to ask my GP about Hypermobility syndrome. I scored 7/9 on the Beighton scale (although I was told my knees do actually sway back and it was a tough decision on whether to mark them positive or not) and after my recent appointment with the GP, they have referred me to rheumatology - my appointment is in a month.
I am new to this website and I’m just writing this post in hope of getting some tips and advice for me upcoming appointment, any ideas of what to expect, or any questions I should ask! Thanks in advance x