I am 28 Year old male and I have EDS (Ehlers-Danlos syndrome) Everyone tells me that I have a soft body like a female. Is it related to EDS?

[Alcatraz]

Hi Everyone. Last year I found out that I have EDS. I had hypermobility since I was a kid but from Last 3-4 years I started noticing that my body especially my upper arms, chest and belly started getting softer by day. I know that soft, doughy, smooth and velvety skin is a symptom of EDS but my body softness resembles to a Female. Many people tell me that my body is soft like a woman and being a man, it kills me inside (no offense to all the ladies but I have been through a depression because of this). When I press my hand or chest, it feels like I am pressing some cotton.

Does this have to do anything with EDS? I read a lot about EDS but no where I found this as a symptom of EDS. Please help me. Please help me.

[Pessox]

Go see a doctor man and try your best to put no mind to it, for it would be wasteful.

I have soft velvety skin, but not the way you describe it, have someone else test your skin perhaps and ask what they think?

[Bek85]

Yes it’s one of the common features of EDs , most of us have unusually soft skin.

[jeffsimon]

I'm a male and have EDS and yes I have soft, doughy, smooth and velvety skin. I'm now 76 yrs old and have lived with it all my life. It's been inconvenient in terms of regular visits to the hospital over the years getting stiched-up for cuts which would be be fairly tolerated for people with normal skin. However generally I have had a normal life and no complaints from the ladies!

[ribby]

Yes. People with EDS have soft velvety skin. I’ve been told mine is as well. Be proud of it. It’s one of the upsides of EDS.