My wife has eds type3 but it's wrecked both our lives

[Christaylor4076]

This evil horrible disease has finally played it's part on our marriage, in the way of causing, stress, upset dont know which way to turn when things get hard when you see your loved one in pain everyday of there lives, and there is nothing you can do as a husband when all you want to do is take it away from her.

Think there should be some help put in place for the sufferer for depression,stress,

Everything that comes with this evil condition it has caused our 21 year marriage to end up in divorce the wifes desision as I want to look after her till the day I take my last breath I love her so so much any body in this same ordeal

[Hidden]

This is just a heartbreaking post. It sounds like you both haven’t found a way to function & maybe your wife is pushing you away to protect you or through guilt feeling like a burden on you. I really think you guys need counselling - I hope you both can agree to go - I actually think separately seeing the same counsellor would work well if it was possible.

I helped my mum recently with finding counselling and there’s a new Gov service where you can refer yourself online and they give you info on services near you - it’s a pay what you can afford scheme so if you can’t afford to pay you don’t have to. Me and my husband had trouble when I was diagnosed with scleroderma (also have EDS but mine is so mild) - it’s such a complex emotional situation as there is grief and stress and anxiety and all sorts going on.

[happytulip]

I'm so sorry to read this. It sounds like you are both having a very difficult time. Its so sad especially as you want to care for her.

I have limited experience, but hurtful nonetheless. I got diagnosed with EDS 3, Lupus, POTs and recurrent pericarditis. My fiance walked out on me three months later his parting words to me were, "have you seen what you look like now." I was in so much pain. I've not heard from him since. To say it destroyed my confidence is an understatement.