I'm new here :)

hi guys...

I'm new here and don't really know what I should say, so I just thought I would just be honest, it is so wonderful and so sad to meet you all i was always told the condition was rare so to see so many faces and read so many stories similar to my own was a shock.

So I suppose hello I am Jen I am a student at university who is balancing dyslexia dyspraxia and Ehlers-Danlos syndrome so any advice, hints or tips would be wonderful.

2 Replies

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  • Hiya Jen! Welcome!

    I have EDS, POTS, MCAD, GORD and some other unrelated things. I've just graduated uni (hooray!) and am now working full time with adjustments, so if you need any help in terms of your rights, getting support from uni or wondering about what to do afterwards and how to make work manageable then feel free to message me.

    Hope you're having a good day and your body is complying with you! 😊

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