Hi. I have been diagnosed with Ehlers Danlos Syndrome type 3 since 2008. I have had to stop work. I do work out at gym as much as possible but deal with chronic pain everyday. I live in a very country isolated area so local hospital has no knowledge of this genetic disorder. That leaves me struggling for treatment with dignity and humanity. I just want to fit in. I am a retired RN and I have never treated anyone the way I have been treated. I hope that the medical field finds its compassion again.
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