I'm curious. I have been having major issues for years and I am certain now that I have EDS. I suffered with joint dislocations and hyper mobility syndrome. Now since this started when I was 12 years old I have had the term EDS thrown round ALOT!
It wasn't until earlier this year when I researched for myself that I became certain. I have GI issues, horrific acid re flux, joints that simply won't stay in place, chronic pain. Plus several other symptoms that are consistent with EDS. So I decided to start trying to get help.
This is where it gets hard. I struggle with painkillers, my doctors have put me on two strong ones that I had a horrific reactions to. I tell this to my GP's and they act like I'm a junkie trying to get a stronger fix. That or I get a condescending doctor who gives me pills to use 'when needed' - after I tell them specifically that I have CHRONIC pain.
I am starting to feel so disheartened and unsupported by medical professionals that it's led to me honestly thinking I'm mental. That I'm some how imagining all these symptoms or I'm blowing them all out of proportion to be dramatic. I feel stupid amounts of relief when I get a bad dislocation or a stong physical symptom other than pain, because I have started doubting myself so much. Did anyone else experience this? I had one doctor give me a very patronizing look when I told them I had started using a cane, so they clearly didn't believe me when I said the pain was horrible.