Just diagnosed

[Suzysheep]

Hi, I've just been diagnosed with hypermobility EDS type 3 .... Which goes some way to explain my very poor healing after surgery.

There was some concern about heart valves. Both the consultant and my gp could hear an abnormality. Is this a normal thing with EDS?

Suzysheep

[trekster22]

Hi and welcome, you can have floppy heart valves with EDS 3\hypermobility syndrome. Also if you can get tested for type 4 as that affects your heart valves.