I have three children , two of whom have numerous symptoms of different types of Eds . We are going to see the GP tomorrow - I am dreading it. Ideally I would like the children to be referred to a consultant with expertise as we have extensive family history of EDS going back three generations also my daughter (14) scored 8/9 on the Beighton scale for hyper mobility . My father 78 has severe Eds symptoms as does my sister 48 yrs . Btw also appears we / they have Von Willebrand disease . I'm worried sick & don't know how to help my children . Please help !
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