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Support DR Myhill eat al re ME PACE Please read



**PLEASE DO COPY YOUR LETTER OF SUPPORT TO cr648@hotmail.co.uk - if you feel comfortable with doing so**


The GMC is the UK doctor’s regulatory authority – the General Medical Council. Patient support is sought from all patients who feel they have been harmed by PACE. You do not have to be a UK citizen.

PACE is the study ‘Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. (2011)’, published in The Lancet.

SEVEN other medical doctors are supporting this complaint but wish to remain anonymous - they are concerned about the impact of such “whistle-blowing” on their future careers within and without the NHS.

The letter of complaint is attached in a Word document - there are 2 parts of this document - Dr Myhill's actual complaint letter and then at the end, a PACE patient support letter template.

The complaint is one of Fraud, namely:

--fraud by false representation

--fraud by failing to disclose information

--fraud by abuse of position

There are also numerous breaches of:

--GMC Guidance on Good Medical Practice

--GMC Guidance on Good Practice in Research

--GMC Guidance on Consent to Research

Dr Myhill is asking for your help.

Please read the letter of complaint and also the ‘PACE patient support letter’ - they are in the same file as attached.


We want people who have been harmed by PACE to write in support of this complaint. You are free to use the PACE patient support letter at the end of the attached document. You could have been harmed in any of these ways and possibly others too:

• suffered damage (including physical, mental or emotional distress) as a result of CBT.

• suffered damage (including physical mental or emotional distress) as a result of GET.

• been denied disability benefits because the physical nature of your disease has not been properly recognised and/or you have been told you have a psychological condition.

• have been denied industrial compensation for your disease because the physical nature of your disease has not been properly recognised and/or you have been told you have a psychological condition.

• have been denied referral or funding for referral to a physician specialising in the biomedical approach to treating CFS/ME.

You do NOT have to have been diagnosed or have fallen ill with CFS/ME after PACE was published [March 2011] to support this complaint.

So, for example if you were diagnosed/fell ill in 1980, but have recently been refused benefits as a result of PACE [for example, for not engaging in CBT or because your illness was considered psychological) or maybe you have suffered mental distress as a result of PACE (for example, benefit applications were more stressful because your illness was considered psychological) then you CAN support this complaint. It will help our case to have as many support letters as possible.

If you feel you have even the smallest ‘case’ for inclusion then please do submit a letter of support – it is incumbent on the GMC to prove that you have not been so affected, not for you to prove that you have!

Please do email if you are in doubt or need help phrasing why you have been harmed by PACE. Please be patient – we will respond as quickly as possible. See the hotmail email address below.

Just put your reasons for supporting this complaint in the relevant section in the attached template letter ‘PACE patient support letter’ [which can be found in the attached file at the end of the document] and fill in any other portions that need filling in [all marked in red] and then:

1--email it to TStephenson@gmc-uk.org - Sir Terence Stephenson is the Chair of the GMC

2--if you can, please send your letter by post too, here is the address –

Sir Terence Stephenson

General Medical Council

Fitness to Practise Directorate

3 Hardman Street

Manchester, M3 3AW.

3—if you feel comfortable with doing so, please can you copy your letter of support to Dr Myhill at cr648@hotmail.co.uk [in the past the GMC have denied receiving letters of support and having physical copies to collate and send to them has been a very powerful tool]


We cannot engage in a running commentary on progress but will give updates as and when possible and necessary.

We know that GMC employees or people who report to the GMC are members of the Dr Myhill groups and so we do have to be circumspect.

You may feel that the letter of complaint could be improved – good!

In 15 years of dealing with the GMC, and other regulatory bodies, one thing above all has become clear: these regulatory investigations are like a game of chess. A marathon not a sprint. You have to plan 6 moves in advance and it sometimes helps your case [in the long run] to initially include what may be regarded as ‘weaknesses’ in your first salvo – this then opens up a discussion where you can tie the opposition in intellectual knots and it is then that you can hit with the killer blow.

Essentially, we are saying – trust us! Between us we have won 30 GMC cases as defendants and numerous cases across many regulatory bodies as complainants.

Thank you.


Also on support dr Sarah Myhill on Facebook group

1 Reply

Hi fidders,

I have a question about something you wrote above:

"been denied disability benefits because the physical nature of your disease has not been properly recognised and/or you have been told you have a psychological condition."

This has me a bit worried. I currently receive benefits based on me having Depression. I also have Hashimoto's Hypothyroidism, but I haven't yet informed the benefits people of that as I don't want to trigger an assessment, so I won't tell them until I have to, so I will tell them at my next review or assessment.

However, I have now developed ME/CFS symptoms and was planning to try and get a diagnosis of ME/CFS to help me get access to support for this condition.

The question is, if I have diagnosis of ME/CFS, along with Hypothyroidism, will it make it more difficult to get/keep getting benefits?

I realise that PACE has given fuel to the fire that people can 'think themselves better', or 'exercise themselves better', and that the fact that ME a physical illness has been ignored.

Sorry for the question.