EDMESH
1,685 members308 posts

Exhausted

I am new to this site and looking for support I just discovered that my referral to Chronic Fatigue clinic has been lost and the original hospital doctor has apologised but I have to fill up the questionnaire again. I only found this out when I contacted doctor after over 3 months waiting when I would be seen. The CFS I have had for years and it took a change of GP to even get the original hospital appointment

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I am not sure how beneficial these CFS clinics actually are.

I was referred 14 weeks ago and received the questionnaire about 2-3weeks ago. Nothing yet.

So far doing my own research has been the only thing yielding any results. I went private to investigate everything plausable via physios, rhumatology, neurology and endocrinology. After ruling out diseases and hormones no one seems to even be able to offer advise!

My saviour so far was drmyhill. Most of her information is available on her website, when i got more energy i bought her book on the kindle for £1.

The diet fixed alot of things for me, along with ensuring you get proper sleep, relaxation etc.

The only things I've added to her regime was glutamin l, this helps so much with the muscle pain as meant to be beneficial for leaky gut.

I am slowly finding issues and fixing them, allergies, sleep, probiotics etc.

I am currently in the process of fixing my gut as i believe i have candida and been doing cocunut pulling, pre biotics, pro biotics, lots of garlic etc and performing bentonite cleanses. I will keep at this as things seem to be improving here. If my white tongue, 2 toe nails that have slight fungal appearances and the symptoms go away i know im on to a winner .

In short buy her book and adjust your diet to the paleo/ketogenic and start taking vitamin c powder if you dont do anything else :)

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Thanks for your advice, as mentioned above I am taking Pro biotics (grown Kefir) every day. I am also consuming garlic gloves with every meal.

I take some tablets with food that contain: Caprylic Acid (from 250mg Calcium Caprylate) 212.5mg Garlic Powder (Organic) 25mg Aloe Vera Powder. (extract 200x) 15mg Cinnamon Bark Powder 15mg Quercetin 15mg Beetroot powder 15mg Thyme 10mg Lactobacillus Acidophilus Probiotic (10 billion / gram) 10mg Bifido Bacteria Probiotic (10 billion / gram) 10mg Cloves 10mg Grapefruit Seed Extract 10mg Glucosamine (vegetarian source) 8mg Rosemary Leaf (10:1 Extract) 8mg Oregano 5mg Zinc (citrate) 3.1mg

Echinacea 1-3 times per day.

VegEPA 3 capsules per day.

Since you mentioned it I have just ordered some Olive leaf extract + black seed oil. +

Black Walnut and Wormwood Complex Alcohol Free - 1 fl oz (10 day try)

I take Sarah's MMM, which contains selenium,magnesium etc etc

Then take B12 + magnesium transdermally .

I haven't added the chocolate yet as it contains milk, 'll add this after the gut problems are fixed.

How long would this protocol normally take to be rid of ?

I also bought these 'Rhodiola Ashwagandha Ginseng Complex' but I haven't been taking them as I feel a pill machine already.

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Sorry that you've been having such a negative experience. I too waited for ages for CF clinic referral to get processed; try contacting the clinic yourself and see if they'll let you short circuit any of the system. Mine sent me some basic info and also suggested going through a checklist on what tests had already been completed by doctors so to avoid any further delays...there are a number of tests that HAVE to have been done recently by hospital or GP before a referral can be accepted.

Since being accepted by the CFS clinic I have basically received information, via a couple of group presentations, on how to PACE myself; but this is easily looked up on the internet (PACE'ing really helps me but I had started it long before it got around to me getting my first clinic appointment) ; so asides the offer of sessions, such as mindfulness and yoga for example, I didn't really get much from the clinic...however, for those of us having to tackle the DWP re benefits, the CFS clinics should be able to do a letter of support to help a claim for ESA or PIP etc. So you may be able to help yourself in the meantime and then just cherry pick the classes that you're offered by the clinic. Just a thought, obviously you have to do what's best and appropriate for you. Good luck! 😀

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