US Website with Dietary Recommendations for CKD

[Blackknight1989]

Many of you ask about changing your diet or what to eat when diagnosed with CKD. You need a conversation with your TRUSTED physician to be sure the new diet is recommend for YOUR SPECIFIC disease but this website provided by the American Kidney Fund in the US is extensive and offers many good recommendations and recipes, diets and options for altering diet for you specifically. This is the link:

kitchen.kidneyfund.org/?_ga...

This is the link to the American Kidney Fund:

kidneyfund.org/

That link to the Kidney Kitchen site looks funky. If it doesn’t work here is how you get to the website through the AKF site. Go to the menu at the top of the site far right side, select the topic “living with kidney disease” choose the “healthy eating and activity,” hit the + sign beside the topic, Kidney Kitchen is the first choice after selecting the + sign. Maybe this will help with understanding how and when to change diet plus tailoring a diet specifically for your CKD issues. As always seek the approval of your care team first as this site says. Just an FYI. Hope it offers some help!

[orangecity41]

I like the section on healthy eating and can select CKD levels.

[Blackknight1989 in reply to orangecity41]

I thought that was awesome. Specific guidance for all stages by stages! Great, hope it helps!

[Rachmaninov2]

Thank you for the link Blackknight, the information is very useful.

[Blackknight1989 in reply to Rachmaninov2]

My pleasure. I hope my information helps you and your comment made my day! Thanks!

[Rachmaninov2 in reply to Blackknight1989]

I appreciate your thoughtfulness in helping others. 😊

[Darlenia]

Excellent website - Kidney Kitchen. It's really nice that recipes can be filtered/tailored to fit personal needs and conditions.

[Blackknight1989 in reply to Darlenia]

Thank you ma’am!

[RHOC in reply to Darlenia]

Thanks!!😏

[userotc]

Because the content is underpinned by a qualified, registered dietician, it seems credible kidneyfund.org/profile/caro...

An alternative (that I personally prefer) is a qualified, registered Nutritional Therapist specialising in CKD. But I certainly wouldn't recommend physicians - generally theyre not properly trained and qualified in nutrition.

[nonna70]

I wish diet advice were dated. A few months ago Dr. Schusterman (both a nephrologist and a chef) said diet restrictions had lessened-certain veggies like tomatoes, whole grains, etc. It's just hard to know which recipes are in which area.

[Blackknight1989 in reply to nonna70]

The NKF, ASN and the Renal Dietician Association publish formalized guidelines for physicians called KIDGO and for the first time in the 2021 updates they published a nutritional guidelines. They recommend a Mediterranean diet as many of the plant based VLPD diets are difficult for most to comply with long term. Since each of us are unique with CKD being different in all of us modifications to the diet you choose most likely will need to be made. In the Mediterranean diet most will need to watch the potassium levels as this diet does include lots of foods with potassium and phosphorus. This link from the kidney fund is updated constantly. So info is current and follows the KIDGO guidelines.

[nonna70 in reply to Blackknight1989]

Thanks. I'm glad to know what's updated.

[Blackknight1989 in reply to nonna70]

My pleasure. Knowing the proper diet is hard for most of us. More than 50% of physicians (including nephrologist) admit to not following (most not even reading) the KIFGO guidelines. Most nephrologists (at least in my experience and I’ve seen probably 20 different nephrologist) have a tendency to join a practice with several others and they have the processes they followed for years and keep those in place. The problem with that is since about 2018 there has finally been attention and money dedicated to CKD and finding some proactive treatments for those of us not on dialysis other than “manage diet and exercise then when (or if) you reach stage 5 we do dialysis until transplant.” So finally there is a new treatment that show significant promise in stopping or drastically slowing eGFR decline. ASN run a project called KidneyX that rewards the “winner” of their artificial kidney project millions of dollars. That is currently 3/5 year (best guess) away from being available. Unfortunately most doctors don’t keep up with any of that info even though most of the nephrologist treating us (at least in the US) are members of the ASN. I’m not commenting on your specific nephrologist jut a general observation. From reading all 146 pages of the KIDGO nutrition guidelines, my take away was twofold. One, while the plant based is far and away the best diet for us, the studies investigating that showed nearly a 80% non-compliance after 16 months. Thus, they recommend the Mediterranean diet as the best to follow with compliance at 5 years still at 75% or so. So diet does matter in most but that was my second takeaway that for us just not eating the “typical American diet” is the most beneficial. Probably TMI but that’s what I usually do…lol!