Disability : I was advised to apply for... - Early CKD Support

Early CKD Support

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Disability

Sdtagoo profile image
8 Replies

I was advised to apply for social security disability by the SS Administration after talking with them on the phone about the option of drawing my SS early (I will be 65 in August of this year). I took early retirement from my full time job due to fatigue, nausea, pain in back, etc. My GFR is 30 and has been as low as 28. I work part-time now, but the symptoms are still evident. I've also developed itching, leg pain, and protein in my urine. I didn't know a person could draw disability until ESRD. Has anyone ev er heard of this?

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Sdtagoo profile image
Sdtagoo
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8 Replies
Mysticlad profile image
Mysticlad

Here are the SSA guidelines for disability for CKD. I would get on that now as the determination process is rather lengthy. I would advise having an experienced SSDI attorney help you. Good luck to you.

kidneyfund.org/kidney-today...

Bunkin profile image
Bunkin

I will say this. My gfr is 8 now. I applied for disability when it was 10 and after all that they denied me. You might consider getting a law firm if you decide to go that direction. I waited for months for an answer. Never heard from them. When I called, my case had been transferred to another office, when I called them they said it had been denied and they had sent a letter , which I never got. Now it's too late to file an appeal. Hope this helps you moving forward. Prayers for you. God can do anything!

Sdtagoo profile image
Sdtagoo in reply toBunkin

Isn't 10 considered end stage renal disease? I thought when you were that low, it was end stage and you were on dialysis & qualified.

Bunkin profile image
Bunkin

I thought so too then I watched a video from a doctor in Middle East who explained GFR is a marker as well as creatinine and when creatinine gets to a certain level is when you go on dialysis. I think a lot depends on your doctor

Sdtagoo profile image
Sdtagoo in reply toBunkin

I can't believe a doctor would not agree that you are disabled. My brother-in-law was on dialysis when his GFR was 6 and he received disability. It continued when he received a transplant. He is still on it.

Bunkin profile image
Bunkin

The doctor doesn't have a say, he just sends the records and you have to fill out all these pages of stuff you can and can't do. I thought I had filled out pretty well but I guess not.

Sdtagoo profile image
Sdtagoo in reply toBunkin

I know that how a doctor words things and codes diagnoses goes a long way.

Bunkin profile image
Bunkin

That could be. I have no idea what he actually puts in the chart

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