Wondering ,I'm a CKD 3 , does anyone pal... - Early CKD Support

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Wondering ,I'm a CKD 3 , does anyone palsate ,its like a heart beat all over, like a pump , told my doc ,they said oh

kirstie43 profile image
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kirstie43
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googie68 profile image
googie68

I have palpitations/fluttering, but put it down to my thyroxine or my phosphate levels. What about Renal Clinic, have you talked to them?

x

Mgt8 profile image
Mgt8

Hi,

I'm CKD 3 also. My doctor referred me to a Cardiologist and I am in the process of having a series of heart tests as I get weak and out of breath quite easily. So far the tests results have been fine but I'm glad to have had them as they have put my mind at rest re my heart.

My suggestion would be to go back to your doctor and ask how you could get to the bottom of what is causing your problem. Hoping it turns out well for you.

kirstie43 profile image
kirstie43

My doc is how can I say it um crap , sat there a few months ago ,she told me she really didn't know how to treat me , wanted to contact my specailist ,then would contact me , haven't heard anything in 6 months ,on the whole I'm doing OK , but wanted to know if anyone else has the same ,thanks guys

Chin69 profile image
Chin69

I know it's a bit straight forward but have you had your blood pressure tested if it's high maybe that's what your feeling, also ask you're specialist if your iron is ok. GP's are useless!

GrannyChris profile image
GrannyChris

kirstie43, I think that Chin69 is right, it would be a good idea to get checked out. Part of the problem is that GPs read in their textbooks that those of us at CKD3 have 'no symptoms' We all know that this is rubbish, but I think that's why they just say 'oh'. More study should be done into changes we report. I bet doctors who are CKD3 would be more sympathetic!

kirstie43 profile image
kirstie43

Yeh that's true , I've asked if its my blood pressure ,,but when they do it at docs it fine ,also I'm not pulsating at the time , as for the gp well that is a real joke , but I have also found the specialist not much better when I was first told I asked about being tired , he said no nothing to do with CKD ,its a silent disease with no side effects ,my reply was well its not silent to me ,tired sick headaches pulsate aching oh and kidney pain , just makes me laugh ,

mar1111 profile image
mar1111

I would also take Chin69 advice I had to insist on seeing a Kidney Doctor....So this morning I had an ultra sound of my Kidney's and the veins going to the Kidney's ...I have to do a 24hr urine and lot's of blood work.

I am also CKD 3 and I find that I get so exhausted just doing things like cooking etc. then after I eat I want to go to sleep. My Dr. thought it was no big deal being stage 3 and I said well it isn't your kidney's so I want to know everything.

Good Luck and insist on having tests done to determine what is going on...

mrsgraham80 profile image
mrsgraham80

It's amazing reading on here how linked all my things are - or perhaps they aren't!! I have been suffering for at least 3 years and put it down to being a Mum of 3, having a job, 2 dogs and a home and hubby! For a happy go lucky, buzzing, running around 33 year old it has taken its toll. I am constantly grumpy, tired and lack any energy. I have had a headache every day for the last 3-4 years, had MRI scan that showed nothing really and given Topamax and sent away to take these for life (still have head ache) have had heart palpitations and a rushing sensation through my body every day which feels odd, then sometimes stars in my eyes. Just been diagnosed with Diabetes 7.2mmol and CKD. Then go back to docs and he thinks I don't have CKD but protein might be coming from elsewhere. eGFR 65 from 93 3 months ago. BP 90/60 Now checking my Liver and bowel. I am not depressed but i feel so low and fed up with being misdiagnosed :((( Just want to feel less tired! Anyone else like me?

kirstie43 profile image
kirstie43 in reply tomrsgraham80

Hi , they don't like to give anything away do they , the biggest problem you have is doctors , just hang in there , but be warned if they do say you have CKD the doctor will tell you there are no side effects ,well everyone on here would say different , they in true like my doctor said to me I really don't know how to treat you , umm faith not , I just get on with it ,I just listen to my body , you will get help from this site .

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