Extra head turning: Hi Everyone, Last... - Dystonia Society

Dystonia Society

602 members192 posts

Extra head turning

peonies18 profile image
2 Replies

Hi Everyone, Last night while watching tv my head was turning as it does but suddenly I found I could see over my right and left shoulder. This has happened before and now of course it’s back to my limited range of not being able to scan a room or environment without turning my whole body. Has anyone experienced anything similar. .?

Written by
peonies18 profile image
peonies18
To view profiles and participate in discussions please or .
2 Replies
rtn3421 profile image
rtn3421

yes, I get some variation in the intensity of the head turning. Some days I can push a bit against it, other days not so much. Whether this is because of the botoxin moving through the muscles or because the dystonia varies in intensity by itself, who knows.

peonies18 profile image
peonies18 in reply to rtn3421

Thanks rtn3421 for your reply. I haven’t had Botox for past 2 years so maybe it is the dystonia. Certainly understand when you say sometimes you can push against it. I have been considering that it really is a syndrome and it can take on a life of it’s own.

Not what you're looking for?

You may also like...

Head and Neck Tremor (External and Internal) with Dystonia

My initial symptoms started with balance issues. The way I would describe it is, say you were in a...

Finding the best specialist for dystonia

I have the chance to find a new neurologist/specialist for a second opinion on my ‘Cervical...

Trial for dopamine- responsive Dystonia?

I've come a long way, and enjoy meeting others in the same boat. Only been on Carbidopa- levodopa...

Hey Hey Hey

Hi everyone, I hope you are well? I have just gone through the worst experience ever with Cervical...

Living with extreme Cervical Dystonia

Hello friends...I’ve had EMG and every medication under the sun, including liquid morphine. I...