Dear Dystonia....

You came into my life around 6 or so years ago, so we think !?

You didn't bother to ask..you just took over my life.

I thought about you last night...and none of it was good.

I think today is the day I just tell you how I really feel about you.

I don't care if you will be mad at me for saying what Im going to say...but I need to do this for "ME"

Remember ME...the person who's life you changed forever.

You've put me in unimaginable pain physically and mentally n you don't seem to care, because you come back time after time with a vengeance.

Physically...you've made my limbs move in directions they were never meant to move in.

The pain I endure in my limbs is unamaneagable...and it turns me into a concrete statue of hell.

But...you still don't care!

My speech gets altered and I cant communicate with anyone for help because they cant understand me.

Im left with feeling like, Im trapped in a box with the lid locked shut.

But you still don't care!

You've made my life even harder, because what you have left me with, is a illness that mimics other medical conditions.

Doctors have used me as a guinea pig...they've told me its all in my head...they've even told me "it looks like Im having a "Stroke"...they don't know...and they don't want to tell me that...they just want to keep torturing me.

But you still don't care!

You have no idea... what you have done to my self esteem, or how many of my friends that didn't stick around, or even the family members that don't want to speak to me about" YOU".

Its always about YOU !

Ive got ALOT more to say to you "Dystonia", but Im not .

Why...

Im better than you and" I AM GOING TO GET RID OF YOU".

Im going to fight you everyday and Im not going to let "You" define my life or who I am.

Im gonna be the winner here...not you! You've taken too much from me already and Im fed up ! I'm taking my life back !

Mark my words... "I" will be a part of getting rid of you, one way or another !

So..sit back and buckle up Dystonia...your in for a hell of a ride with ME.. Im A FIGHTER..and I NEVER GIVE UP !

Your going down...and it starts now!

Love and kisses,

Dystonia Survivor

P.S. Im ALSO getting rid of all your friends..like...Parkingsons Disease/ALS/any and ALL Movement Disorders and etc... Im coming for them too...and your "ALL" gonna lose!!! Start running now,because Im coming for all of you!

[trapis2]

I loved your letter to that nasty affliction!! Ny dad had Parkinson's and it was so hard to see him get gradually worse all the time,until he was bedridden. My Mom kept him home and took care of him for years until he passed away. Knock those diseases out !! If anyone can do it , you can.

Should them you are the boss !!! Love and hugs

[Hidden in reply to trapis2]

It took alot for me to write the post.I thought about it all night n it felt good to let it out.no one close to me knows about my post n i don't know if I'll show them.everyone close to me would act weird if they did read it.

Sorry to hear about ur dad.

Thanks for ur reply.

[BlanketTime1]

I love that moment when i'm coming out of a hard time and I think, "alright b****, buckle up." keep strong!

[Hidden in reply to BlanketTime1]

Ditto..thanks for the reply

[starveycat]

Nothing to do with dystonia but worth thinking about. My daughter had has rheumatoid arthritis she was given methotraxate and injected monthly she was very sick. Like you she decided no more. She us now an organic vegan and takes health supplements and has no symptoms of rheumatoid . Nutrition plays a very large part in our well being. Good luck

[Hidden in reply to starveycat]

Thank u.. n best to ur daughter n her battle.

[Grvarley]

Hi did you get dystonia after medication changes. Please read my post.